Locate experienced physicians specializing in kidney cancer and CKD care to guide your treatment and recovery. U.S. News creates a list of the top hospitals in the United States, by specialty, on an annual basis. The report is usually published in the month of July each year. Here is the list of hospitals / medical centers for Kidney Cancer and Kidney Disease. U.S. News & World Report Best Hospitals Overall Best for Kidney Cancer Best for Kidney Disease (Failure) Last 5-Year Rankings 2024 2023 2022 2021 2020 Find a Physician These are several links about providers or where to seek care for kidney cancer diagnosis and treatment. The sources are provided for informational and educational purposes only and not a recommendation from KidneyCouch. Finding Cancer Care - National Cancer Institute Treatment Center Finder - Kidney Cancer Association Best Hospitals for Cancer - U.S. News & World Report

Leave no stone unturned. Learn valuable information about kidney stones. Kidney Stones Not all stones are alike. Calcium Oxalate Overview Types Kidney Stone Diet Treatment Options Treat and Prevent Other Links Ten Facts About Kidney Stones What Causes Kidney Stones How to Prevent Kidney Stones Ureteroscopy - Laser Lithotripsy Calcium Oxalate Stones - Stone Relief.com Renal Calculi, Nephrolithiasis FAQ's - Kidney Stones Kidney Stones - Cleveland Clinic Kidney Stones Patient Guide - Urology Care Foundation Kidney Stones - JAMA Network Visual Guide to Kidney Stones - Slideshow Good Food for Kidney Stones Cookbook - AUA © Copyright Best Kidney Stone Procedure for Me - MUSIC Kidney Managing Pain_Urinary Symptoms post-Ureteroscopy Low Oxalate Diet Guidelines for Stone Formers - UMHS Nutrition Guidelines for Preventing Kidney Stones - Mayo Clinic To play, press and hold the enter key. To stop, release the enter key.

Engage with Kidney Couch Interactive for personalized tools and resources to support your kidney cancer journey. KidneyCouch Interactive © Copyright Are you or a loved one currently dealing with kidney disease and in need of support and connection to interactive tools and engagement? Forums for discussion can facilitate deeper engagement among individuals dealing with kidney cancer and chronic kidney disease, fostering a sense of belonging within the community of patients dealing with similar issues. Kidney Cancer Support Groups KidneyCouch Community - Smart Patients Kidney Cancer Information and Support Community - Kidney Cancer Association Patient Perspectives - Virtual Support Group - Kidney Cancer Association Kidney Cancer Unfiltered - Podcasts - Kidney Cancer Association Kidney Cancer Support Group - Mayo Clinic Stages1-2-3 Kidney Cancer Support Community - KCCure Chronic Kidney Disease (CKD) Support Group Go To KidneyCouch Community One-on-One Connection One-on-One Cancer Support Community Resource Partners Imerman Angels provides free, personalized one-on-one cancer support for cancer fighters, survivors, previvors and caregivers. The purpose of the matches made by Imerman Angels is to provide one-on-one cancer support from someone who has been there. To reach out to Imerman Angels to find a mentor for one-on-one support, go to https://imermanangels.org/find-mentor-angel/ Imerman Angels – Certification 🎉 Proud to be part of Imerman Angels! 🌟 I completed the Mentor training at Imerman Angels in June 2025 and am officially a Mentor Angel. Imerman Angels provides free one-on-one support to cancer fighters, survivors, previvors, and caregivers to ensure no one faces cancer alone. Sign up to be a Mentor or Mentee and learn more at @imermanangels or visit their website imermanangels.org Patient-Focused Tools Recent Trends in SEER Age-Adjusted Incidence Rates, 2000-2022 By Sex, Delay-adjusted SEER Incidence Rate, All Races / Ethnicities, All Ages, All Stages Quick Quiz: Kidney Cancer Take the Quiz Cancer Survivors Network Kidney Cancer cBioPortal - Cancer Genomic Data Kidney Cancer

Visualize your kidney cancer journey with my comprehensive diagram, designed to simplify complex information. Common Patient Journey - Kidney Cancer Testing Diagnosis Treatment Surveillance Emotional Support Signs & Symptoms Imaging CT Scan MRI Bone Scan Biopsy Types and Grades Renal Cell Papillary Chromophobe Surveillance Imaging Ablation Surgery Lab Tests Physician Visit Immunotherapy Collecting Duct Renal Medullary Treatment by Stage Psychotherapy 1-on-1 Support Online Community Reduce Stress Stages Forward Back ? Narrative

Review the terms and conditions for using KidneyCouch.com. Terms and Conditions KidneyCouch.com Last updated: June 3, 2025 Read and agree to these terms and conditions before using this Site. Table of Contents Interpretation and Definitions Interpretation Definitions Acknowledgment WE DO NOT PRACTICE MEDICINE User Accounts Creating an Account, Passwords, Security Your account on Our Service. Communications Between KidneyCouch and You Content Your Right to Post Content Content Restrictions Content Backups Copyright Policy Intellectual Property Infringement DMCA Notice and DMCA Procedure for Copyright Infringement Claims Intellectual Property Your Feedback to Us Links to Other Websites Termination Limitation of Liability “AS IS” and “AS AVAILABLE” Disclaimer Governing Law Disputes Resolution For European Union (EU) Users United States Legal Compliance Severability and Waiver Severability Waiver Translation Interpretation Changes to These Terms and Conditions Contact Us Interpretation and Definitions Interpretation The words of which the initial letter is capitalized have meanings defined under the following conditions. The following definitions shall have the same meaning regardless of whether they appear in singular or in plural. Definitions For the purposes of these Terms and Conditions: Affiliate means an entity that controls, is controlled by or is under common control with a party, where “control” means ownership of 50% or more of the shares, equity interest or other securities entitled to vote for election of directors or other managing authority. Account means a unique account created for You to access our Service or parts of our Service. Country refers to: Minnesota, United States Naming (“We”, “Us” or “Our” in this Agreement) refers to KidneyCouch, Rochester, Minnesota. Content refers to content such as text, images, or other information that can be posted, uploaded, linked to or otherwise made available by You, regardless of the form of that content. Device means any device that can access the Service such as a computer, a cellphone or a digital tablet. Feedback means feedback, innovations or suggestions sent by You regarding the attributes, performance or features of our Service. Service refers to the Application or the Website or both. Terms and Conditions (also referred as “Terms”) mean these Terms and Conditions that form the entire agreement between You and KidneyCouch regarding the use of the Service. Third-party Social Media Service means any services or content (including data, information, products or services) provided by a third-party that may be displayed, included or made available by the Service. Website refers to KidneyCouch, accessible from https://www.kidneycouch.com/ You means the individual accessing or using the Service, or the KidneyCouch, or other legal entity on behalf of which such individual is accessing or using the Service, as applicable. Acknowledgment These are the Terms and Conditions governing the use of this Service and the agreement that operates between You and the KidneyCouch. These Terms and Conditions set out the rights and obligations of all users regarding the use of the Service. Your access to and use of the Service is conditioned on Your acceptance of and compliance with these Terms and Conditions. These Terms and Conditions apply to all visitors, users and others who access or use the Service. By accessing or using the Service You agree to be bound by these Terms and Conditions. If You disagree with any part of these Terms and Conditions, then You may not access the Service. You represent that you are over the age of 18. The KidneyCouch does not permit those under 18 to use the Service. Your access to and use of the Service is also conditioned on Your acceptance of and compliance with the Privacy Policy of the KidneyCouch. Our Privacy Policy describes Our policies and procedures on the collection, use and disclosure of Your personal information when You use the Application or the Website and tells You about Your privacy rights and how the law protects You. Please read Our Privacy Policy carefully before using Our Service. WE DO NOT PRACTICE MEDICINE You understand and agree that we are not engaged in the practice of medicine, either through the Site or any associated communications or services, and that the Site is not a substitute for professional medical advice, diagnosis, or treatment. You are encouraged to seek professional diagnosis and treatment for medical conditions. By agreeing to these Terms and Conditions, You acknowledge that KidneyCouch has no responsibility, in any way, to provide You with medical advice or take any medically related action in response to information that You provide on this Site or to the Site administrator of KidneyCouch. We do not recommend or endorse any specific studies, treatments, tests, procedures, physicians, opinions, products, or other information that may appear on the Site or on links reached through the Site. User Accounts Creating an Account, Passwords, Security When You create an account or register with Us, You must provide Us information that is accurate, complete, and current at all times. Failure to do so constitutes a breach of the Terms, which may result in immediate termination of Your account on Our Service. You choose a password. You are responsible for safeguarding the password that You use to access the Service and for any activities or actions under Your password, whether Your password is with Our Service or a Third-Party Social Media Service. You agree not to disclose or share Your password to any third party. You must notify Us immediately upon becoming aware of any breach of security or unauthorized use of Your account. You may not use as a username the name of another person or entity or that is not lawfully available for use, a name or trademark that is subject to any rights of another person or entity other than You without appropriate authorization, or a name that is otherwise offensive, vulgar or obscene. We will not be liable for any loss you or others may incur because of someone else using your account, either with or without your consent. You may not use anyone else's account. You may choose to post information on the Site about yourself or about someone else. If you post about someone else, you must have that person’s permission prior to doing so. If you choose to post information, whether about yourself or any other person: • You understand and agree that all current and future users participating in Community Discussion will be able to view the information you share. • You understand that current or future users participating in Community Discussion might save or disclose your information in other places without your knowledge or consent. You agree that if that were to occur, neither you nor anyone else would have a remedy or claim against KidneyCouch. Communications Between KidneyCouch and You You consent to receive all communications from us in electronic form via your account in the Site or via the email address you provided when you registered with KidneyCouch. You agree that all Terms and Conditions, agreements, notices, disclosures and other communications that we provide to you electronically satisfy any legal requirement that such communications would satisfy if they were in writing. Content Your Right to Post Content Our Service allows You to post Content. You are responsible for the Content that You post to the Service, including its legality, reliability, and appropriateness. By posting Content to the Service, You grant Us the right and license to use, modify, publicly perform, publicly display, reproduce, and distribute such Content on and through the Service. You retain any and all of Your rights to any Content You submit, post or display on or through the Service and You are responsible for protecting those rights. You agree that this license includes the right for Us to make Your Content available to other users of the Service, who may also use Your Content subject to these Terms. You represent and warrant that: (i) the Content is Yours (You own it) or You have the right to use it and grant Us the rights and license as provided in these Terms, and (ii) the posting of Your Content on or through the Service does not violate the privacy rights, publicity rights, copyrights, contract rights or any other rights of any person. Content Restrictions The KidneyCouch is not responsible for the content of the Service’s users. You expressly understand and agree that You are solely responsible for the Content and for all activity that occurs under your account, whether done so by You or any third person using Your account. You may not transmit any Content that is unlawful, offensive, upsetting, intended to disgust, threatening, libelous, defamatory, obscene or otherwise objectionable. Examples of objectionable Content includes, but is not limited to, the following: Unlawful or promoting unlawful activity. Defamatory, discriminatory, or mean-spirited content, including references or commentary about religion, race, sexual orientation, gender, national/ethnic origin, or other targeted groups. Spam, machine or randomly generated, constituting unauthorized or unsolicited advertising, chain letters, any other form of unauthorized solicitation, or any form of lottery or gambling. Containing or installing any viruses, worms, malware, trojan horses, or other content that is designed or intended to disrupt, damage, or limit the functioning of any software, hardware or telecommunications equipment or to damage or obtain unauthorized access to any data or other information of a third person. Infringing on any proprietary rights of any party, including patent, trademark, trade secret, copyright, right of publicity or other rights. Impersonating any person or entity including KidneyCouch. Violating the privacy of any third person. False information and features. The KidneyCouch reserves the right, but not the obligation, to, in its sole discretion, determine whether any Content is appropriate and complies with this Terms, refuse or remove this Content. The KidneyCouch further reserves the right to make formatting and edits and change the manner of any Content. The KidneyCouch can also limit or revoke the use of the Service if You post such objectionable Content. As the KidneyCouch cannot control all content posted by users and/or third parties on the Service, you agree to use the Service at your own risk. You understand that by using the Service You may be exposed to content that You may find offensive, indecent, incorrect or objectionable, and You agree that under no circumstances will the KidneyCouch be liable in any way for any content, including any errors or omissions in any content, or any loss or damage of any kind incurred as a result of your use of any content. Content Backups Although regular backups of Content are performed, the KidneyCouch does not guarantee there will be no loss or corruption of data. Corrupt or invalid backup points may be caused by, without limitation, Content that is corrupted prior to being backed up or that changes during the time a backup is performed. The KidneyCouch will provide support and attempt to troubleshoot any known or discovered issues that may affect the backups of Content. But You acknowledge that the KidneyCouch has no liability related to the integrity of Content or the failure to successfully restore Content to a usable state. You agree to maintain a complete and accurate copy of any Content in a location independent of the Service. Copyright Policy Intellectual Property Infringement We respect the intellectual property rights of others. It is Our policy to respond to any claim that Content posted on the Service infringes a copyright or other intellectual property infringement of any person. If You are a copyright owner, or authorized on behalf of one, and You believe that the copyrighted work has been copied in a way that constitutes copyright infringement that is taking place through the Service, You must submit Your notice in writing to the attention of kidneycouch@gmail.com and include in Your notice a detailed description of the alleged infringement. You may be held accountable for damages (including costs and attorneys’ fees) for misrepresenting that any Content is infringing Your copyright. DMCA Notice and DMCA Procedure for Copyright Infringement Claims You may submit a notification pursuant to the Digital Millennium Copyright Act (DMCA) by providing our Copyright Agent with the following information in writing (see 17 U.S.C 512(c)(3) for further detail): An electronic or physical signature of the person authorized to act on behalf of the owner of the copyright’s interest. A description of the copyrighted work that You claim has been infringed, including the URL (i.e., web page address) of the location where the copyrighted work exists or a copy of the copyrighted work. Identification of the URL or other specific location on the Service where the material that You claim is infringing is located. Your address, telephone number, and email address. A statement by You that You have a good faith belief that the disputed use is not authorized by the copyright owner, its agent, or the law. A statement by You, made under penalty of perjury, that the above information in Your notice is accurate and that You are the copyright owner or authorized to act on the copyright owner’s behalf. You can contact KidneyCouch via email at kidneycouch@gmail.com . Upon receipt of a notification, the KidneyCouch will take whatever action, in its sole discretion, it deems appropriate, including removal of the challenged content from the Service. Intellectual Property The Service and its original content (excluding Content provided by You or other users), features and functionality are and will remain the exclusive property of the KidneyCouch and its licensors. The Service is protected by copyright, trademark, and other laws of both the Country and foreign countries. Our trademarks and trade dress may not be used in connection with any product or service without the prior written consent of the KidneyCouch. Your Feedback to Us You assign all rights, title and interest in any Feedback You provide the KidneyCouch. If for any reason such assignment is ineffective, You agree to grant the KidneyCouch a non-exclusive, perpetual, irrevocable, royalty free, worldwide right and license to use, reproduce, disclose, sub-license, distribute, modify and exploit such Feedback without restriction. Links to Other Websites Our Service may contain links to third-party web sites or services that are not owned or controlled by the KidneyCouch. The KidneyCouch has no control over, and assumes no responsibility for, the content, privacy policies, or practices of any third-party web sites or services. You further acknowledge and agree that the KidneyCouch shall not be responsible or liable, directly or indirectly, for any damage or loss caused or alleged to be caused by or in connection with the use of or reliance on any such content, goods or services available on or through any such web sites or services. We strongly advise You to read the terms and conditions and privacy policies of any third-party web sites or services that You visit. Termination We may terminate or suspend Your Account immediately, without prior notice or liability, for any reason whatsoever, including without limitation if You breach these Terms and Conditions. Upon termination, Your right to use the Service will cease immediately. If You wish to terminate Your Account, You may simply discontinue using the Service. Limitation of Liability Notwithstanding any damages that You might incur, the entire liability of the KidneyCouch and any of its suppliers under any provision of this Terms and Your exclusive remedy for all of the foregoing shall be limited to the amount actually paid by You through the Service or 100 USD if You haven’t purchased anything through the Service. To the maximum extent permitted by applicable law, in no event shall the KidneyCouch or its suppliers be liable for any special, incidental, indirect, or consequential damages whatsoever (including, but not limited to, damages for loss of profits, loss of data or other information, for business interruption, for personal injury, loss of privacy arising out of or in any way related to the use of or inability to use the Service, third-party software and/or third-party hardware used with the Service, or otherwise in connection with any provision of this Terms), even if the KidneyCouch or any supplier has been advised of the possibility of such damages and even if the remedy fails of its essential purpose. Some states do not allow the exclusion of implied warranties or limitation of liability for incidental or consequential damages, which means that some of the above limitations may not apply. In these states, each party’s liability will be limited to the greatest extent permitted by law. “AS IS” and “AS AVAILABLE” Disclaimer The Service is provided to You “AS IS” and “AS AVAILABLE” and with all faults and defects without warranty of any kind. To the maximum extent permitted under applicable law, the KidneyCouch, on its own behalf and on behalf of its Affiliates and its and their respective licensors and service providers, expressly disclaims all warranties, whether express, implied, statutory or otherwise, with respect to the Service, including all implied warranties of merchantability, fitness for a particular purpose, title and non-infringement, and warranties that may arise out of course of dealing, course of performance, usage or trade practice. Without limitation to the foregoing, the KidneyCouch provides no warranty or undertaking, and makes no representation of any kind that the Service will meet Your requirements, achieve any intended results, be compatible or work with any other software, applications, systems or services, operate without interruption, meet any performance or reliability standards or be error free or that any errors or defects can or will be corrected. Without limiting the foregoing, neither the KidneyCouch nor any of the KidneyCouch’s provider makes any representation or warranty of any kind, express or implied: (i) as to the operation or availability of the Service, or the information, content, and materials or products included thereon; (ii) that the Service will be uninterrupted or error-free; (iii) as to the accuracy, reliability, or currency of any information or content provided through the Service; or (iv) that the Service, its servers, the content, or e-mails sent from or on behalf of the KidneyCouch are free of viruses, scripts, trojan horses, worms, malware, timebombs or other harmful components. Some jurisdictions do not allow the exclusion of certain types of warranties or limitations on applicable statutory rights of a consumer, so some or all the above exclusions and limitations may not apply to You. But in such a case the exclusions and limitations set forth in this section shall be applied to the greatest extent enforceable under applicable law. Governing Law The laws of the Country, excluding its conflicts of law rules, shall govern this Terms and Your use of the Service. Your use of the Application may also be subject to other local, state, national, or international laws. Disputes Resolution If You have any concern or dispute about the Service, You agree to first try to resolve the dispute informally by contacting the KidneyCouch. For European Union (EU) Users If You are a European Union consumer, you will benefit from any mandatory provisions of the law of the country in which you are resident in. United States Legal Compliance You represent and warrant that You are not located in a country that is subject to the United States government embargo, or that has been designated by the United States government as a “terrorist supporting” country, and You are not listed on any United States government list of prohibited or restricted parties. Severability and Waiver Severability If any provision of these Terms is held to be unenforceable or invalid, such provision will be changed and interpreted to accomplish the objectives of such provision to the greatest extent possible under applicable law and the remaining provisions will continue in full force and effect. Waiver Except as provided herein, the failure to exercise a right or to require performance of an obligation under these Terms shall not affect a party’s ability to exercise such right or require such performance at any time thereafter nor shall the waiver of a breach constitute a waiver of any subsequent breach. Translation Interpretation These Terms and Conditions may have been translated if We have made them available to You on our Service. You agree that the original English text shall prevail in the case of a dispute. Changes to These Terms and Conditions We reserve the right, at Our sole discretion, to modify or replace these Terms at any time. If a revision is material, We will make reasonable efforts to provide at least 30 days’ notice prior to any new terms taking effect. What constitutes a material change will be determined at Our sole discretion. By continuing to access or use Our Service after those revisions become effective, You agree to be bound by the revised terms. If You do not agree to the new terms, in whole or in part, please stop using the website and the Service. Contact Us If you have any questions about these Terms and Conditions, You can contact us: By email: kidneycouch@gmail.com By visiting this page on our website: https://www.kidneycouch.com/ Last Updated: June 3, 2025 Terms and Conditions pdf

Discover the role of surveillance in kidney cancer care, including monitoring strategies and what they mean for your health. Surveillance Clear cell, renal cell carcinoma (ccRCC) patient's that have a partial or radical nephrectomy are usually followed up under a surveillance program based on their individual case. General guidelines, such as those outlined by Dr. Brad Leibovich, Mayo Clinic, serve as recommendations for physicians to follow patients who have had a nephrectomy, monitoring the patient for any recurrence of renal cancer. Dr. Leibovich and his team developed the Progression-Free Survival Score to classify patient's as low, medium, and high risk for recurrence. Active Surveillance Follow Up for Kidney Cancer Predicting Outcomes in RCC Prognostic Models Patient Classification* The Leibovich Model recommends imaging / follow up for all patient classifications at 3 months post-surgery to check for recurrence as well as establish a new baseline for the patient for comparison against future imaging / testing. The higher the risk a patient is for recurrence, the more frequent are the intervals for ongoing testing. Stage I and II (Low Risk) 3 months post op CT or MRI with contrast of abdomen Chest x-ray Basic Metabolic Panel (BMP) then, Annually for 5 years after surgery (same testing as above) then, > 5 years Renal ultrasound Chest x-ray at clinical discretion Stage III (Intermediate Risk) 3 months post op CT or MRI with contrast of abdomen/pelvis Chest x-ray or CT Basic Metabolic Panel (BMP) then, 6 month intervals for 3 years (same testing as above) then, >3 years - Annually (same testing as above) then, > 5 years - Patient Specific Based on individual patient's case / history Stage IV (High Risk) 3 months post op CT or MRI with contrast of abdomen/pelvis Chest x-ray or CT Basic Metabolic Panel (BMP) then, 4 month intervals for 2 years (same testing as above) then, >2 years at 6 month intervals (years 3 to 5 after surgery) (same testing as above) then, > 5 years - Annually (same testing as above) *Based on published Mayo Clinic risk score (Leibovich BC, Cancer 2003;97:1663-1671) National Comprehensive Cancer Network Kidney Cancer Guidelines The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 33 leading cancer centers devoted to patient care, research, and education. The NCCN develops resources that present valuable information to stakeholders in health care. Part of their mission is creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers. One of the guidelines is the recommended treatment for patients with kidney cancer. The most recent Kidney Cancer Treatment Guidelines (March 2025) can be viewed on the NCCN website in pdf format. These guidelines are detailed and extensive. Well worth your time and attention if you want to understand the details of the management and treatment guidelines for kidney cancer at all stages. An important note is that the guidelines are just that - guidelines. No single follow-up plan is appropriate (fits) all patients. Management should be individualized based on each patient's unique medical condition and other contributing factors.

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Read the Privacy Policy expectations for using KidneyCouch.com. Privacy Policy This Privacy Policy describes Our policies and procedures on the collection, use and disclosure of Your information when You use the Service and tells You about Your privacy rights and how the law protects You. We use Your Personal data to provide and improve the Service. By using the Service, You agree to the collection and use of information in accordance with this Privacy Policy. Definitions For the purposes of this Privacy Policy: means a unique account created for You to access our Service or parts of our Service. means an entity that controls, is controlled by or is under common control with a party, where "control" means ownership of 50% or more of the shares, equity interest or other securities entitled to vote for election of directors or other managing authority. reference to either "We", "Us" or "Our" in this Agreement) refers to KidneyCouch. are small files that are placed on Your computer, mobile device or any other device by a website, containing the details of Your browsing history on that website among its many uses. refers to: Minnesota, United States means any device that can access the Service such as a computer, a cellphone or a digital tablet. Personal Data is any information that relates to an identified or identifiable individual. refers to the Application or the Website or both. Service Provider means any natural or legal person who processes the data on behalf of KidneyCouch. It refers to third-party companies or individuals to facilitate the Service, to provide the Service on behalf of KidneyCouch, to perform services related to the Service or to assist KidneyCouch in analyzing how the Service is used. Third-party Social Media Service refers to any website or any social network website through which a User can log in or create an account to use the Service. Usage Data refers to data collected automatically, either generated by the use of the Service or from the Service infrastructure itself (for example, the duration of a page visit). refers to KidneyCouch, accessible from https://kidneycouch.com means the individual accessing or using the Service, or KidneyCouch, or other legal entity on behalf of which such individual is accessing or using the Service, as applicable. Collecting and Using Your Personal Data Types of Data Collected Usage Data Usage Data is collected automatically when using the Service. Usage Data may include information such as Your Device's Internet Protocol address (e.g. IP address), browser type, browser version, the pages of our Service that You visit, the time and date of Your visit, the time spent on those pages, unique device identifiers and other diagnostic data. When You access the Service by or through a mobile device, We may collect certain information automatically, including, but not limited to, the type of mobile device You use, Your mobile device unique ID, the IP address of Your mobile device, Your mobile operating system, the type of mobile Internet browser You use, unique device identifiers and other diagnostic data. We may also collect information that Your browser sends whenever You visit our Service or when You access the Service by or through a mobile device. Tracking Technologies and Cookies We use Cookies and similar tracking technologies to track the activity on Our Service and store certain information. Tracking technologies used are beacons, tags, and scripts to collect and track information and to improve and analyze Our Service. The technologies We use may include: Cookies or Browser Cookies. A cookie is a small file placed on Your Device. You can instruct Your browser to refuse all Cookies or to indicate when a Cookie is being sent. However, if You do not accept Cookies, You may not be able to use some parts of our Service. Unless you have adjusted Your browser setting so that it will refuse Cookies, our Service may use Cookies. Web Beacons. Certain sections of our Service and our emails may contain small electronic files known as web beacons (also referred to as clear gifs, pixel tags, and single-pixel gifs) that permit KidneyCouch, for example, to count users who have visited those pages or opened an email and for other related website statistics (for example, recording the popularity of a certain section and verifying system and server integrity). Cookies can be "Persistent" or "Session" Cookies. Persistent Cookies remain on Your personal computer or mobile device when You go offline, while Session Cookies are deleted as soon as You close Your web browser. We use both Session and Persistent Cookies for the purposes set out below: Necessary / Essential Cookies Type: Session Cookies Administered by: Us Purpose: These Cookies are essential to provide You with services available through the Website and to enable You to use some of its features. They help to authenticate users and prevent fraudulent use of user accounts. Without these Cookies, the services that You have asked for cannot be provided, and We only use these Cookies to provide You with those services. Cookies Policy / Notice Acceptance Cookies Type: Persistent Cookies Administered by: Us Purpose: These Cookies identify if users have accepted the use of cookies on the Website. Functionality Cookies Type: Persistent Cookies Administered by: Us Purpose: These Cookies allow us to remember choices You make when You use the Website, such as remembering your login details or language preference. The purpose of these Cookies is to provide You with a more personal experience and to avoid You having to re-enter your preferences every time You use the Website. For more information about the cookies we use and your choices regarding cookies, please visit our Cookies Policy or the Cookies section of our Privacy Policy. Use of Your Personal Data KidneyCouch may use Personal Data for the following purposes: To provide and maintain our Service, including to monitor the usage of our Service. To manage Your Account: to manage Your registration as a user of the Service. The Personal Data You provide can give You access to different functionalities of the Service that are available to You as a registered user. To contact You: To contact You by email as a mobile application's push notifications regarding updates or informative communications related to the functionalities, products or contracted services, including the security updates, when necessary or reasonable for their implementation. To manage Your requests: To attend and manage Your requests to Us. For other purposes: We may use Your information for other purposes, such as data analysis, identifying usage trends, and to evaluate and improve our Service, and your experience. We may share Your personal information in the following situations: With other users: when You share personal information or otherwise interact in the public areas with other users, such information may be viewed by all users and may be publicly distributed outside. If You interact with other users or register through a Third-Party Social Media Service, Your contacts on the Third-Party Social Media Service may see Your name, profile, pictures and description of Your activity. Similarly, other users will be able to view descriptions of Your activity, communicate with You and view Your profile. With Your consent: We may disclose Your personal information for any other purpose with Your consent. Retention of Your Personal Data KidneyCouch will retain Your Personal Data only for as long as is necessary for the purposes set out in this Privacy Policy. We will retain and use Your Personal Data to the extent necessary to comply with our legal obligations (for example, if we are required to retain your data to comply with applicable laws), resolve disputes, and enforce our legal agreements and policies. KidneyCouch will also retain Usage Data for internal analysis purposes. Usage Data is generally retained for a shorter period of time, except when this data is used to strengthen the security or to improve the functionality of Our Service, or We are legally obligated to retain this data for longer time periods. Transfer of Your Personal Data Your information, including Personal Data, is processed at KidneyCouch's operating offices and in any other places where the parties involved in the processing are located. It means that this information may be transferred to — and maintained on — computers located outside of Your state, province, country or other governmental jurisdiction where the data protection laws may differ than those from Your jurisdiction. Your consent to this Privacy Policy followed by Your submission of such information represents Your agreement to that transfer. KidneyCouch will take all steps reasonably necessary to ensure that Your data is treated securely and in accordance with this Privacy Policy and no transfer of Your Personal Data will take place to an organization or a country unless there are adequate controls in place including the security of Your data and other personal information. Delete Your Personal Data You have the right to delete or request that We assist in deleting the Personal Data that We have collected about You. Our Service may give You the ability to delete certain information about You from within the Service. You may update, amend, or delete Your information at any time by signing in to Your Account, if you have one, and visiting the account settings section that allows you to manage Your personal information. You may also contact Us to request access to, correct, or delete any personal information that You have provided to Us. Please note, however, that We may need to retain certain information when we have a legal obligation or lawful basis to do so. Disclosure of Your Personal Data Law enforcement Under certain circumstances, KidneyCouch may be required to disclose Your Personal Data if required to do so by law or in response to valid requests by public authorities (e.g. a court or a government agency). Other legal requirements The Company may disclose Your Personal Data in the good faith belief that such action is necessary to: Comply with a legal obligation Protect and defend the rights or property of KidneyCouch Prevent or investigate possible wrongdoing in connection with the Service Protect the personal safety of Users of the Service or the public Protect against legal liability Security of Your Personal Data The security of Your Personal Data is important to Us, but remember that no method of transmission over the Internet, or method of electronic storage is 100% secure. While We strive to use commercially acceptable means to protect Your Personal Data, We cannot guarantee its absolute security. Minor's / Children's Privacy Our Service does not address anyone under the age of 18. We do not knowingly collect personally identifiable information from anyone under the age of 18. 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Learn about chronic kidney disease - what is it and how to best live a full life. Chronic Kidney Disease The Basics Overview Kidney Education Kidney Biopsy - youtube CKD - CDC CKD - NIH CKD - NLM Kidney Disease - NIH Specifics Stages of CKD eGFR Explained Graphics Cystatin C Stage 3a CKD All About CKD What You Need to Know Kidney Tests Explained Contrast Dye & Your Kidneys Publications Cystatin C vs. eGFR Eating Right for CKD Kidney Function Decline in cT1a Patients eGFR After Nephrectomy General Topics Measuring Your Kidney Health GFR eGFR Calculator Pathology Tests for CKD Symptoms & Causes Life With A Single Kidney Kidney Failure Risk Equation (KFRE) This calculator predicts your risk of kidney failure in patients with chronic kidney disease (CKD). There is a calculator for Kidney Cancer (after a partial or complete nephrectomy) as well as the KFRE calculator f or all other patients with CKD.

Connect with my partner, Imerman Angels, and their personalized one-on-one support with Imerman Angels to navigate your kidney cancer or CKD journey with confidence. One-on-One support is offered by someone who has lived through a similar experience - someone who has experienced kidney cancer firsthand or has been a caregiver for a person with kidney cancer. Having someone to talk to who knows what you are going through can help you feel less alone and provide perspective that only firsthand experience can provide. One-on-One Support for patients and family members KidneyCouch and Imerman Angels are committed to providing patients and family members with the resources and connections so that no one walks alone as they deal with a kidney cancer diagnosis. One-on-One support is at the heart of the mission of Imerman Angels. KidneyCouch is proud to partner with Imerman Angels to ensure that patients and family members with kidney cancer have access to one-on-one support. Whether you are a patient who is newly diagnosed with kidney cancer; are in the early stages of treatment; need a shoulder to lean on in dealing with cancer; or you are a family member and need support, Imerman Angels has a network of mentors that would love to connect with you. This confidential service is provided at no cost for cancer patients, survivors, previvors and caregivers at any stage. Support can last as long as needed - from one conversation to an ongoing connection over many years. Individuals with kidney cancer or caregivers who would like to receive one-on-one support will undergo a personalized matching process and be paired up with someone who has a similar diagnosis and experiences. Our hope is that peer-to-peer exchanges will facilitate positive relationships between individuals affected by kidney cancer so that they may share emotional support, encouragement, and information. How to Partner with Imerman Angels Fighter / Survivor / Previvor Caregiver If you are interested in finding a one-on-one support mentor, or if you would like to become a Mentor Angel for others, Imerman Angels would love to hear from you and help. Imerman Angels will match you and a mentor according to age, gender, cancer type and experience; so you know you are talking to someone who truly understands what you’re going through, in a supportive and empathetic environment. The same is true for individuals who would like to "give back" and serve as a Mentor Angel for others going through a similar experience as they are / did. Click on the link below to take you to the Imerman Angels website to start the process. Thank You! Click below to request a mentor or volunteer to become a mentor: I Am a Fighter / Survivor / Previvor Kidney cancer patients need emotional support as they navigate the journey of initial diagnosis, treatment options, and a "new normal" going forward. Family members and friends often serve in a caregiver role for the individual dealing with kidney cancer. Doing so can take a toll on the caregiver both physically and emotionally. Caregivers need emotional support as well. Often times the caregiver does not recognize the need or doesn't feel comfortable asking for emotional support. Imerman Angels is there to help you as the helper. If you would like to request a Caregiver Mentor Angel - or - you would like to become a Caregiver Mentor Angel, please click the "Caregiver" link below to take you to the Imerman Angels website to learn more. Thank You! Click below to request a caregiver mentor or volunteer to become a caregiver mentor: I Am a Caregiver About Imerman Angels Imerman Angels was created on the belief that no one should have to face cancer alone and without the necessary support. Their mission is to provide personalized connections that enable one-on-one support among cancer patients, survivors, caregivers and previvors. Through their unique matching process, Imerman Angels partners anyone, any age, anywhere, and any cancer type seeking support from someone with a similar diagnosis and experiences—a “Mentor Angel.” To learn more about Imerman Angels visit : https://imermanangels.org/ Imerman Angels - Contact Information https://imermanangels.org/contact/

Join the 'Orange Up' movement to raise awareness and support for kidney cancer and CKD patients worldwide. March is Kidney Disease Awareness Month The color ribbon for Kidney Cancer is orange. For Chronic Kidney Disease, it is green. ORANGE UP! The month of March is Kidney Cancer Awareness month. Light up the outside lights of your house, ask City leaders to light up a prominent structure, or simply wear an orange ribbon to bring awareness to kidney cancer. Kidney Cancer Awareness Association - Orange Up 81K Challenge Plummer Building The Plummer Building, Mayo Clinic, Rochester, Minnesota, lit up in orange in March every year. Friends of Stonehedge Waterfall The Friends of Stonehedge Waterfall, Rochester, MN, was lit up in orange in the month of March 2024 to bring awareness to kidney cancer. Each March going forward the waterfall will be glowing orange. Throughout the year, the Stonehedge Waterfall is lit up in different colors for cancer awareness and other causes. In April, the colors are green and blue for National Donate Life Month, honoring individuals who donate organs to others. What a great way to bring awareness and honor to these causes and menaces. There are 57 common cancer ribbon colors. Shout out to the Orange and Green! GREEN UP! March is also Chronic Kidney Disease (CKD) Awareness month. Green is the ribbon color to bring awareness. University of New Mexico Celebrates Green

Join my partner, Smart Patients, and their welcoming and supportive online community to share experiences, ask questions, and learn from others facing similar challenges. KidneyCouch is proud to partner with Smart Patients, an online community for patients and families affected by kidney cancer and chronic kidney disease. The Smart Patients kidney community's online support complements KidneyCouch's belief that accessing valuable resources, stories, and articles can make a difference in your journey. You are not alone. Sunlight through the trees. You are surrounded by others who would love to connect and support you. Go To KidneyCouch Community on Smart Patients About Smart Patients Smart Patients is an online community for patients and families affected by a variety of illnesses. Connect with others and learn at your own pace about scientific developments related to your condition, share your questions and concerns with other members, and use what you learn in the context of your own life. With the right tools, you and other patients can do the same. Communities At Smart Patients, they have over 100 communities covering oncology, autoimmune diseases (like Sjögren’s and lupus), neurodegenerative diseases and their symptoms (like Parkinson’s, Alzheimer’s and dementia). They also have several communities where caregivers share tips for coping while caring for a child, parent or spouse. Smart Patients Community Home Kidney Cancer Conversations At Smart Patients, they believe patients are the most underutilized resource in healthcare. They’ve watched patients become experts in their conditions — and see that their knowledge improves the care they receive. Go To Conversations Strength in Unity Smart Patients Partners Smart Patients - Contact Information Website https://www.smartpatients.com/site Email Info@smartpatients.com

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Discover accurate online kidney prognostic models to assess outcomes post-nephrectomy. Utilize advanced tools for reliable predictions. Kidney Cancer Prognosis and Outcomes The Basics Understanding Cancer Prognosis Kidney Cancer - MD Anderson Survival Rates for Kidney Cancer Cancer Survival Rate Explained Frequently Asked Questions T1Renal Masses - MUSIC Urology Cancer Survival Rates - What it Means for Your Prognosis Prognostic Models Predicting Outcomes in RCC Kidney Cancer Nomogram - MSK Cancer Prediction Tools - A Few Leibovich 2018 Model Leibovich 2018 Model Calc. Prognostic Factors - EAU Head-to-Head Comparison of Prognostic Models Non-Mets Chromophobe RCC Meet-URO Score Publications Prediction Models After Radical Nephrectomy Postoperative Prognostic Model Surveillance Strategies for RCC Comparison of Prognostic Models Prognostic Model Scoring System Optimal Scoring System? Machine Learning Datasets Cancer Survival: An Overview of Measures, Uses, and Interpretation Validation of the Meet-URO Score Prognostic Models - Comparison of factors included in a few models. Not all prognostic (predictive) models for kidney cancer recurrence or overall survival use the same clinical criteria. The information below builds on the study "Post nephrectomy management of localized renal cell carcinoma. From risk stratification to therapeutic evidence in an evolving clinical scenario.", April 2023, by Dr. Chiara Ciccarese (researcher at Università Cattolica del Sacro Cuore and Oncologist at Fondazione Policlinico Gemelli IRCCS. Rome, Italy) and colleagues. Using this work, I build upon the model as well as entered my clinical case through each model for comparison of predicted outcomes. The models included in the analysis are designed for post-nephrectomy (partial or radical) for renal cell carcinoma (RCC) of the three most common subtypes - clear cell, papillary, and chromophobe. As pointed out in the literature, physicians / scientists in the medical field have developed prognostic models to improve the ability to predict accurately the outcome for patients who are treated surgically for RCC since 2001 (or earlier). Prognostic algorithms can be used to counsel patients, determine the need for adjuvant therapy, stratify patients for clinical trials, and develop appropriate postoperative surveillance programs that are tailored to a patient's risk for disease progression. [1] It needs to be stressed that calculations from any prognostic model is an average based on studies conducted to-date, are usually based on data that is at least five years old and does not take into account advances in treatment or changes in general, an individual's overall health, lifestyle, environmental factors, etc. When using a prognostic nomogram, the calculations for your predicted cancer recurrence or overall survival are not specific to you. They are averages based on similar patients that have been included in a database. That being said, many kidney cancer patients like me, want a more informed prediction of RCC recurrence and overall life expectancy rather than none at all. Physicians / medical centers that utilize data from prognostic models that have been validated by research studies in addition to the physicians' ongoing experience in treating patients and their outcomes, helps to inform regarding the ongoing accuracy of the existing prognostic models in the treatment recommendations for a patient's unique clinical presentation. The models will continue to advance as the science in the medical field does - with the discovery of new biomarkers, molecular features, gene and expression profiling, etc.[2] Post Nephrectomy Prognostic Models - Criteria Included in Selected Models Comparison of Predicted Results for My Clinical Situation - Jeff Kallis Details of My Prognostic Results Prognostic Models - Survival Rates Explained - NIH [1] A Review of Prognostic Pathologic Features and Algorithms for Patients Treated Surgically for Renal Cell Carcinoma, Christine M. Lohse MS, John C. Cheville MD, Clinics In Lab Medicine, June 2005, https://www.sciencedirect.com/science/article/abs/pii/S0272271205000144 [2] Prognostic factors in renal cell carcinoma, Alessandro Volpe 1 , Jean Jacques Patard , World J Urol, June 2010, https://pubmed.ncbi.nlm.nih.gov/20364259/

Welcome to KidneyCouch, your trusted resource for kidney cancer and CKD support. Empowering patients and families with reliable information and community care regarding kidney cancer and chronic kidney disease. KidneyCouch © Copyright STRENGTH in UNITY At KidneyCouch, we are dedicated to providing a supportive and informative space for kidney cancer patients and those who are also dealing with chronic kidney disease (CKD). Access valuable resources, stories, and articles that can make a difference in your journey. Quick Links KidneyCouch Podcast About the Couch Resource Library The Patient Journey Testing & Diagnosis Treatment Options Surveillance Emotional Support Journey Diagram PURPOSE KidneyCouch is committed to offering support and information to individuals battling kidney cancer and/or chronic kidney disease (CKD). Our goal is to create a community that fosters connection, understanding, and empowerment for patients and their loved ones. Through resource links, stories, and articles, we aim to provide helpful insights and education so that you are better informed in discussing your kidney cancer and chronic kidney disease with your physician. Always consult your physician before making any medical decisions. Friends Around the Couch KidneyCouch gives recognition and appreciation to the following organizations and their efforts to address kidney cancer and chronic kidney disease. Urology Care Foundation Kidney Cancer Association National Kidney Foundation American Cancer Society Imerman Angels The Patient Story Smart Patients Cancer Interviews INSPIRING STORIES Read Now Purpose of This Site This website was developed and is maintained for the sole purpose of providing a "Library" of resources for patients dealing with kidney cancer, chronic kidney disease, or kidney stones. There is no fundraising, sponsors, or business activities of any kind. The information included on this website is for informational purposes only. This site does not provide medical advice.

Read inspirational stories from kidney cancer and CKD survivors, offering hope and motivation for your journey. Inspirational Stories Boy With Umbrella It's No Problem for God Darla Noble, Daily Bible Inspirations, 2023 "There was once a small village, which was suffering from a severe drought. The crops were dying, and the villagers and their animals had very little water to drink. One day, to try to find a solution to the drought, the village priest called the villagers to gather at the village square to pray together for rain. He told them to bring along a token of their faith, so the prayer would be done in sincere faith. And so, the villagers gathered at the square bringing with them tokens of their faith. Some brought the Holy Bible while others carried small crosses. They all prayed aloud with great faith and hope. Sure enough, within a few minutes it began to rain. The whole crowd was overjoyed and danced happily. The priest noticed that among the joyous crowd was a nine-year-old boy, clutching an umbrella as a token of faith. The priest admired this little boy, who had brought an umbrella in total faith that God would surely hear his prayers and send rain." Comment by Jeff Kallis: That’s faith. Seeing the world through a child’s eyes. They hear and see the obvious that adults often take for granted or walk past and don’t even notice. I must admit, I haven’t been carrying an umbrella as I deal with cancer. I’ve wondered why God let this happen to me, why me? Kidney Cancer Association Honor Wall Check out these stories from the Kidney Cancer Association (KCA). Add yourself to the Honor Wall. Kidney Cancer Association Honor Wall One of my favorite quotes, by Erv Miller, Rochester, MN A shout out to urology surgeons everywhere. click on image to enlarge Kidney Cancer Stories Enjoy these patient stories at The Patient Story