top of page

Search Results

Search this site

36 results found with an empty search

  • Mike Peterson | KidneyCouch

    Back Mike Peterson My father, Mike, was an avid naturalist and outdoorsman who could pretty much run circles uphill around people who were half his age. It was hard to keep up with him! He had always been a muscular, yet petite man. He was a quiet, reserved man, who, despite that, loved to joke and show others a slower pace of life. During the last half of 2024, though, he began to notice he didn't have the same strength and energy he had always had. His appetite, which had always been vigorous, was gone now, too. He thought it was all a part of aging, since he had just retired. The fatigue persisted. He would still climb the steep hills around his house in order to chop firewood and manually haul huge logs down to his house via wheelbarrow, but, now it took extreme effort for him to do so. But still, that man was tough as a pine knot to do the things he did. I, along with other concerned loved ones, thought maybe him slowing down and being more reclusive was depression. By March of 2025, he was sleeping excessively, and he had night sweats. Still, he refused to go to the doctor and he still managed to go up into the woods. Back in his 20s and 30s, he had had reoccurring kidney stones that had resulted in multiple surgeries. It made him fear going back to doctors. "They're just looking for something to be wrong with me." When we went out for lunch for Mother's Day, it was clear to me how much weight he had lost. He didn't eat much at all, and he was irritable, which wasn't like him at all. It was obvious to me something was wrong, because he wasn't acting like his normal self. His voice sounded strained, as well. His wife begged him to go to the doctor, and I did too. This battle with trying to convince my dad went back and forth with him until he finally agreed at the end of May to go to the local Emergency Department to get tests. It started out that they found a tumor on his kidney and his oxygen was low. He was immediately told to go to another local hospital that could perform better imaging. He would be admitted to that hospital. Someone asked him how long he had felt sick, and he told them "too long". More findings. He had tumors in his kidneys, liver and lungs. His diagnosis was stage 4 renal cell carcinoma. Other than the loss of appetite and fatigue, he said he hadn't had kidney pain or any other symptoms. He said he'd fight it like a tiger, no matter what the outcome. He and I discussed the facts of his diagnosis, and he wanted me to know that his prognosis wasn't good. He had worked in a long-term health facility for 32 years and he had seen a lot during that time. He and I knew treatments could bring comfort, and we wanted quality of life. I wanted my daddy cured, but, I knew it wouldn't be. He was sent home with oxygen support. His first immunotherapy was set to start on July 1st. On June 30th, he ended up in the Emergency Department again due to confusion, low oxygen, and blood clots that were discovered in his leg and lungs. He told me that morning he was ready to go home. His last words to me were "I love you." He passed away quietly the next morning, on July 1st, the same day he would have begun his immunotherapy. In his own way, on his own terms, he had received his ultimate healing from kidney cancer. I love and miss you, Daddy, every single day.

  • Sid Sadler | KidneyCouch

    Back Sid Sadler Being diagnosed with kidney cancer at 32 years of age wasn't in my "plan," if we want to call it a plan. I'm 34 now, and approaching another round of scans to ensure the cancer removed from my body is gone. December of 2023, I had an episode of hematuria in my urine, and that led to a CT which revealed a 10.5 cm tumor on my left kidney. A slew of appointments made with Vanderbilt led to a plan of a radical nephrectomy removing my tumor and left kidney. February of 2024 the surgery took place. Surprisingly, I recovered well. I had my surgery on a Monday, and I was home that Wednesday afternoon. Eagerly awaiting my pathology results, while also browsing the internet for others in my situation. I didn't find many, but I found a few, and I leaned on those few very hard. With no other evidence of disease, I hoped for a diagnosis of stage two or three, knowing other factors such as grade and type played a big factor in my outlook. The results come back. Stage 2b, grade two Clear Cell Renal Carcinoma. After meeting with my team, a scan schedule was put into place. Hesitant and nervous at first, I learn the rhythm we all learn after cancer enters our lives. Soon thereafter, my wife and I find out she is expecting a baby, and our world goes from one end of the spectrum to another end of emotions. We welcome a beautiful healthy baby girl into the world just short of one year after my surgery. Life is crazy, isn't it? I started as a scared patient, and I still am. However, I'm also equipped with knowledge now, and most importantly perspective. I dove into advocacy, joining the patient family advisory councils at Vanderbilt Ingram Cancer Center, and The Kidney Cancer Association. I was recently invited to join the Board of Directors for The Judy Nicholson Kidney Cancer Foundation. If I could say one thing to you, it's that cancer isn't a period for a lot of us. It's a comma. Once a plan is set in place, things will get better. We have come a long way in treatment for both localized and stage four kidney cancer. I'm confident in my team and the other countless doctors researching this disease. Onward.

  • Journey Diagram | KidneyCouch

    Visualize your kidney cancer journey with my comprehensive diagram, designed to simplify complex information. Common Patient Journey - Kidney Cancer Testing Diagnosis Treatment Surveillance Emotional Support Signs & Symptoms Imaging CT Scan MRI Bone Scan Biopsy Types and Grades Renal Cell Papillary Chromophobe Surveillance Imaging Ablation Surgery Lab Tests Physician Visit Immunotherapy Collecting Duct Renal Medullary Treatment by Stage Psychotherapy 1-on-1 Support Online Community Reduce Stress Stages Forward Back ? Narrative

  • Press Releases | KidneyCouch

    Read press releases from KidneyCouch. PRESS RELEASES 1 / Partnership Announcement with Smart Patients February 13, 2026 FOR IMMEDIATE RELEASE: KidneyCouch Supports Patients and their Families with an Online Kidney Cancer Community KidneyCouch partners with Smart Patients to create a new online kidney cancer community that will make it easier for patients and families to support and learn from one another. ROCHESTER, MN, February 13, 2026: Today, KidneyCouch is proud to announce a new partnership with Smart Patients, an online peer-to-peer support forum for patients and their families, which allows KidneyCouch to extend its ability to help those impacted by kidney cancer by adding virtual social and emotional support to their outreach programs. Patients and families affected by kidney cancer can join the Smart Patients kidney cancer or chronic kidney disease community for free to share, interact, and learn from each other in a safe, supportive environment. Patients are invited to join the kidney cancer community through the following link: KidneyCouch Smart Patients Community. Individuals can join the community by securely sharing their email addresses and setting up a free personal account. Once the account is confirmed participants will have access to information, and resources, and be able to participate in community conversations on topics of interest. About KidneyCouch KidneyCouch is dedicated to providing a supportive and informative space for kidney cancer patients and those who are also dealing with chronic kidney disease (CKD). It provides resources, stories, and articles to its community members. About Smart Patients: Smart Patients is an online community where patients and caregivers affected by serious illnesses learn from each other. Members share personal experiences, ask and answer questions, and gain knowledge in an ad-free, private space that helps them make better-informed decisions about their care. The platform hosts more than 100 disease-specific communities and is free to join. Learn more at KidneyCouch Smart Patients Community. Contact: Kristi Lynden kristi@smartpatients.com Smart Patient Social Media Handles: Facebook (@smartpatientscommunity) Instagram and Threads (@smart_patients_community) LinkedIn (@Smart Patients) Bluesky (@smartpatients.bsky.social) 2 / Affiliate Partnership Announcement with the Kidney Cancer Association October 20, 2025 KCA Welcomes New Affiliate Partner KidneyCouch Kidney Cancer Association The Kidney Cancer Association (KCA) welcomes KidneyCouch as a new Affiliate Partner. KidneyCouch is committed to offering support and information to individuals battling kidney cancer and/or chronic kidney disease (CKD) with a goal to create a community that fosters connection, understanding, and empowerment for patients and their loved ones. Founder Jeff Kallis, 64, was diagnosed with stage 3 clear cell renal cell carcinoma (RCC) in 2023 and has since written a book about his journey, has been featured in multiple news stories, and created KidneyCouch to increase awareness, education, and support for patients and family members dealing with kidney cancer and chronic kidney disease. His personal mission has always been to connect with and support fellow patients so that no one has to walk this journey alone. For more information about Kallis’s full story, visit KidneyCouch – About. Jeff Kallis’ kidney cancer prompted questions. He wanted to help others find answers. “KidneyCouch is proud to create this affiliation with the Kidney Cancer Association,” Kallis said. “There is strength in unity and there is no better partner than the KCA in creating awareness, education, and finding a cure for kidney cancer.” “It’s gratifying to see how Jeff has used his personal experience to create a welcoming space for meaningful connection,” said Gretchen E. Vaughan, KCA’s President and CEO. “With our shared values, we are looking forward to working together!” The KCA’s Affiliate Partners help expand the support available for people impacted by kidney cancer and allows for strategic collaborations that will advance research, advocacy, and education. KidneyCouch joins seven existing KCA Affiliate Partner organizations: the Chris “CJ” Johnson Foundation, the Chromophobe and Oncocytic Tumor Alliance, HLRCC Foundation, Elevate Childhood Research and Advocacy, Joey’s Wings Foundation, the Judy Nicholson Kidney Cancer Foundation, and the Wilms Cancer Foundation. Media Contact: Radha Chitale Senior Director of Communications 847.332.1051 ext. 113 | rchitale@www.kidneycancer.org 3 / Partnership Announcement with Imerman Angels August 15, 2025 KidneyCouch is pleased to announce that it has formed a partnership with Imerman Angels. Imerman Angels matches a cancer patient with another cancer patient with similar stories and experiences. In addition to the support I received from my wife Cindy, our sons, family, and friends, it would have been very helpful to have a personal connection with someone who had the same diagnosis and story as mine. There are people out there who want to be available to help others navigate their cancer journey – relating to you on a level that others cannot. Now, I want to “give back” to other people diagnosed with kidney cancer and need some emotional / social support as they ride this roller coaster. In July, I became a certified Imerman Angels Mentor Angel to do just that. No one needs to navigate the unknowns alone. Imerman Angles intentionally matches cancer patients according to age, gender, type of cancer, and experience; so, you know you are talking to someone who truly understands what you’re going through, in a supportive and caring connection. Imerman Angels provides this connection free of charge to anyone seeking support, connection and community. If you know of anyone who is dealing with cancer and would like or benefit from a one-on-one connection, please reach out to Imerman Angels at https://imermanangels.org/. If you are cancer survivor and would like to become a Mentor Angel, reach out to Imerman Angels at https://imermanangels.org/give-support/. To learn more about Imerman Angels, visit these links: KidneyCouch / Imerman Angels Partnership: https://www.kidneycouch.com/imermanangels Imerman Angels Resource / Partner Page: https://imermanangels.org/resources/ Imerman Angels – Home Page https://imermanangels.org/

  • Rules of Engagement | KidneyCouch

    Review the rules and regulations for KidneyCouch.com. Rules of Engagement and Expectations All users of this Site are expected to follow the Terms and Conditions and Privacy Policy below. Terms and Conditions Privacy Policy

  • Newsletter | KidneyCouch

    Stay informed with our periodic newsletter, featuring the latest updates, tips, and resources for kidney cancer and CKD. Periodic newsletters from KidneyCouch August 2025 Features the new partnership with Imerman Angels. October 2025 Features the new Affiliate Partnership with Kidney Cancer Association February 2026 Features the new partnership with Smart Patients. Join our mailing list Email* Subscribe I want to subscribe to your mailing list.

  • Kidney Diet | KidneyCouch

    Following the proper diet is critical for your kidney health. Learn valuable tips from trusted experts. Kidney Friendly Diets Illustration by wellness.rice.edu Kidney Diet Links Eating healthy benefits you in many ways, one of which is your kidneys. These are just a few eating tips to check out. Mediterranean Diet Best Foods for Kidney Diet Eating Right for Chronic Kidney Disease Kidney Friendly Diet Kidney Diet Recipes Kidney Health Diet - Basics Eat Well Diet Example - Jeff Kallis's Diet Healthy habits include not sitting on the couch all day. Unless you're sitting around the couch with us!

  • KidneyCouch Interactive | KidneyCouch

    Engage with Kidney Couch Interactive for personalized tools and resources to support your kidney cancer journey. KidneyCouch Interactive © Copyright Are you or a loved one currently dealing with kidney disease and in need of support and connection to interactive tools and engagement? Forums for discussion can facilitate deeper engagement among individuals dealing with kidney cancer and chronic kidney disease, fostering a sense of belonging within the community of patients dealing with similar issues. Kidney Cancer Support Groups KidneyCouch Community - Smart Patients Kidney Cancer Information and Support Community - Kidney Cancer Association Patient Perspectives - Virtual Support Group - Kidney Cancer Association Kidney Cancer Unfiltered - Podcasts - Kidney Cancer Association Kidney Cancer Support Group - Mayo Clinic Stages1-2-3 Kidney Cancer Support Community - KCCure Chronic Kidney Disease (CKD) Support Group Go To KidneyCouch Community One-on-One Connection One-on-One Cancer Support Community Resource Partners Imerman Angels provides free, personalized one-on-one cancer support for cancer fighters, survivors, previvors and caregivers. The purpose of the matches made by Imerman Angels is to provide one-on-one cancer support from someone who has been there. To reach out to Imerman Angels to find a mentor for one-on-one support, go to https://imermanangels.org/find-mentor-angel/ Imerman Angels – Certification 🎉 Proud to be part of Imerman Angels! 🌟 I completed the Mentor training at Imerman Angels in June 2025 and am officially a Mentor Angel. Imerman Angels provides free one-on-one support to cancer fighters, survivors, previvors, and caregivers to ensure no one faces cancer alone. Sign up to be a Mentor or Mentee and learn more at @imermanangels or visit their website imermanangels.org Patient-Focused Tools Recent Trends in SEER Age-Adjusted Incidence Rates, 2000-2022 By Sex, Delay-adjusted SEER Incidence Rate, All Races / Ethnicities, All Ages, All Stages Quick Quiz: Kidney Cancer Take the Quiz Cancer Survivors Network Kidney Cancer cBioPortal - Cancer Genomic Data Kidney Cancer

  • Emotional Support | KidneyCouch

    Find emotional support and resources to help you and your loved ones cope with kidney cancer and CKD challenges. Emotional Rollercoaster Ride Dealing with kidney cancer and chronic kidney disease can be like a roller coaster ride that you want to get off. Here are some tips on how to deal with the emotional side of kidney disease. Emotions and Cancer Feelings Scanxiety Kidney Cancer Stories Navigating Cancer Tips Coping and Support Cancer Patient Advocate Examining the Relationship Patient Navigator - KCA Coping Effectively - CKD Psychosocial Effects Managing Emotions - Part I Managing Emotions - Part II

  • Terms and Conditions | KidneyCouch

    Review the terms and conditions for using KidneyCouch.com. Terms and Conditions KidneyCouch.com Last updated: June 3, 2025 Read and agree to these terms and conditions before using this Site. Table of Contents Interpretation and Definitions Interpretation Definitions Acknowledgment WE DO NOT PRACTICE MEDICINE User Accounts Creating an Account, Passwords, Security Your account on Our Service. Communications Between KidneyCouch and You Content Your Right to Post Content Content Restrictions Content Backups Copyright Policy Intellectual Property Infringement DMCA Notice and DMCA Procedure for Copyright Infringement Claims Intellectual Property Your Feedback to Us Links to Other Websites Termination Limitation of Liability “AS IS” and “AS AVAILABLE” Disclaimer Governing Law Disputes Resolution For European Union (EU) Users United States Legal Compliance Severability and Waiver Severability Waiver Translation Interpretation Changes to These Terms and Conditions Contact Us Interpretation and Definitions Interpretation The words of which the initial letter is capitalized have meanings defined under the following conditions. The following definitions shall have the same meaning regardless of whether they appear in singular or in plural. Definitions For the purposes of these Terms and Conditions: Affiliate means an entity that controls, is controlled by or is under common control with a party, where “control” means ownership of 50% or more of the shares, equity interest or other securities entitled to vote for election of directors or other managing authority. Account means a unique account created for You to access our Service or parts of our Service. Country refers to: Minnesota, United States Naming (“We”, “Us” or “Our” in this Agreement) refers to KidneyCouch, Rochester, Minnesota. Content refers to content such as text, images, or other information that can be posted, uploaded, linked to or otherwise made available by You, regardless of the form of that content. Device means any device that can access the Service such as a computer, a cellphone or a digital tablet. Feedback means feedback, innovations or suggestions sent by You regarding the attributes, performance or features of our Service. Service refers to the Application or the Website or both. Terms and Conditions (also referred as “Terms”) mean these Terms and Conditions that form the entire agreement between You and KidneyCouch regarding the use of the Service. Third-party Social Media Service means any services or content (including data, information, products or services) provided by a third-party that may be displayed, included or made available by the Service. Website refers to KidneyCouch, accessible from https://www.kidneycouch.com/ You means the individual accessing or using the Service, or the KidneyCouch, or other legal entity on behalf of which such individual is accessing or using the Service, as applicable. Acknowledgment These are the Terms and Conditions governing the use of this Service and the agreement that operates between You and the KidneyCouch. These Terms and Conditions set out the rights and obligations of all users regarding the use of the Service. Your access to and use of the Service is conditioned on Your acceptance of and compliance with these Terms and Conditions. These Terms and Conditions apply to all visitors, users and others who access or use the Service. By accessing or using the Service You agree to be bound by these Terms and Conditions. If You disagree with any part of these Terms and Conditions, then You may not access the Service. You represent that you are over the age of 18. The KidneyCouch does not permit those under 18 to use the Service. Your access to and use of the Service is also conditioned on Your acceptance of and compliance with the Privacy Policy of the KidneyCouch. Our Privacy Policy describes Our policies and procedures on the collection, use and disclosure of Your personal information when You use the Application or the Website and tells You about Your privacy rights and how the law protects You. Please read Our Privacy Policy carefully before using Our Service. WE DO NOT PRACTICE MEDICINE You understand and agree that we are not engaged in the practice of medicine, either through the Site or any associated communications or services, and that the Site is not a substitute for professional medical advice, diagnosis, or treatment. You are encouraged to seek professional diagnosis and treatment for medical conditions. By agreeing to these Terms and Conditions, You acknowledge that KidneyCouch has no responsibility, in any way, to provide You with medical advice or take any medically related action in response to information that You provide on this Site or to the Site administrator of KidneyCouch. We do not recommend or endorse any specific studies, treatments, tests, procedures, physicians, opinions, products, or other information that may appear on the Site or on links reached through the Site. User Accounts Creating an Account, Passwords, Security When You create an account or register with Us, You must provide Us information that is accurate, complete, and current at all times. Failure to do so constitutes a breach of the Terms, which may result in immediate termination of Your account on Our Service. You choose a password. You are responsible for safeguarding the password that You use to access the Service and for any activities or actions under Your password, whether Your password is with Our Service or a Third-Party Social Media Service. You agree not to disclose or share Your password to any third party. You must notify Us immediately upon becoming aware of any breach of security or unauthorized use of Your account. You may not use as a username the name of another person or entity or that is not lawfully available for use, a name or trademark that is subject to any rights of another person or entity other than You without appropriate authorization, or a name that is otherwise offensive, vulgar or obscene. We will not be liable for any loss you or others may incur because of someone else using your account, either with or without your consent. You may not use anyone else's account. You may choose to post information on the Site about yourself or about someone else. If you post about someone else, you must have that person’s permission prior to doing so. If you choose to post information, whether about yourself or any other person: • You understand and agree that all current and future users participating in Community Discussion will be able to view the information you share. • You understand that current or future users participating in Community Discussion might save or disclose your information in other places without your knowledge or consent. You agree that if that were to occur, neither you nor anyone else would have a remedy or claim against KidneyCouch. Communications Between KidneyCouch and You You consent to receive all communications from us in electronic form via your account in the Site or via the email address you provided when you registered with KidneyCouch. You agree that all Terms and Conditions, agreements, notices, disclosures and other communications that we provide to you electronically satisfy any legal requirement that such communications would satisfy if they were in writing. Content Your Right to Post Content Our Service allows You to post Content. You are responsible for the Content that You post to the Service, including its legality, reliability, and appropriateness. By posting Content to the Service, You grant Us the right and license to use, modify, publicly perform, publicly display, reproduce, and distribute such Content on and through the Service. You retain any and all of Your rights to any Content You submit, post or display on or through the Service and You are responsible for protecting those rights. You agree that this license includes the right for Us to make Your Content available to other users of the Service, who may also use Your Content subject to these Terms. You represent and warrant that: (i) the Content is Yours (You own it) or You have the right to use it and grant Us the rights and license as provided in these Terms, and (ii) the posting of Your Content on or through the Service does not violate the privacy rights, publicity rights, copyrights, contract rights or any other rights of any person. Content Restrictions The KidneyCouch is not responsible for the content of the Service’s users. You expressly understand and agree that You are solely responsible for the Content and for all activity that occurs under your account, whether done so by You or any third person using Your account. You may not transmit any Content that is unlawful, offensive, upsetting, intended to disgust, threatening, libelous, defamatory, obscene or otherwise objectionable. Examples of objectionable Content includes, but is not limited to, the following: Unlawful or promoting unlawful activity. Defamatory, discriminatory, or mean-spirited content, including references or commentary about religion, race, sexual orientation, gender, national/ethnic origin, or other targeted groups. Spam, machine or randomly generated, constituting unauthorized or unsolicited advertising, chain letters, any other form of unauthorized solicitation, or any form of lottery or gambling. Containing or installing any viruses, worms, malware, trojan horses, or other content that is designed or intended to disrupt, damage, or limit the functioning of any software, hardware or telecommunications equipment or to damage or obtain unauthorized access to any data or other information of a third person. Infringing on any proprietary rights of any party, including patent, trademark, trade secret, copyright, right of publicity or other rights. Impersonating any person or entity including KidneyCouch. Violating the privacy of any third person. False information and features. The KidneyCouch reserves the right, but not the obligation, to, in its sole discretion, determine whether any Content is appropriate and complies with this Terms, refuse or remove this Content. The KidneyCouch further reserves the right to make formatting and edits and change the manner of any Content. The KidneyCouch can also limit or revoke the use of the Service if You post such objectionable Content. As the KidneyCouch cannot control all content posted by users and/or third parties on the Service, you agree to use the Service at your own risk. You understand that by using the Service You may be exposed to content that You may find offensive, indecent, incorrect or objectionable, and You agree that under no circumstances will the KidneyCouch be liable in any way for any content, including any errors or omissions in any content, or any loss or damage of any kind incurred as a result of your use of any content. Content Backups Although regular backups of Content are performed, the KidneyCouch does not guarantee there will be no loss or corruption of data. Corrupt or invalid backup points may be caused by, without limitation, Content that is corrupted prior to being backed up or that changes during the time a backup is performed. The KidneyCouch will provide support and attempt to troubleshoot any known or discovered issues that may affect the backups of Content. But You acknowledge that the KidneyCouch has no liability related to the integrity of Content or the failure to successfully restore Content to a usable state. You agree to maintain a complete and accurate copy of any Content in a location independent of the Service. Copyright Policy Intellectual Property Infringement We respect the intellectual property rights of others. It is Our policy to respond to any claim that Content posted on the Service infringes a copyright or other intellectual property infringement of any person. If You are a copyright owner, or authorized on behalf of one, and You believe that the copyrighted work has been copied in a way that constitutes copyright infringement that is taking place through the Service, You must submit Your notice in writing to the attention of kidneycouch@gmail.com and include in Your notice a detailed description of the alleged infringement. You may be held accountable for damages (including costs and attorneys’ fees) for misrepresenting that any Content is infringing Your copyright. DMCA Notice and DMCA Procedure for Copyright Infringement Claims You may submit a notification pursuant to the Digital Millennium Copyright Act (DMCA) by providing our Copyright Agent with the following information in writing (see 17 U.S.C 512(c)(3) for further detail): An electronic or physical signature of the person authorized to act on behalf of the owner of the copyright’s interest. A description of the copyrighted work that You claim has been infringed, including the URL (i.e., web page address) of the location where the copyrighted work exists or a copy of the copyrighted work. Identification of the URL or other specific location on the Service where the material that You claim is infringing is located. Your address, telephone number, and email address. A statement by You that You have a good faith belief that the disputed use is not authorized by the copyright owner, its agent, or the law. A statement by You, made under penalty of perjury, that the above information in Your notice is accurate and that You are the copyright owner or authorized to act on the copyright owner’s behalf. You can contact KidneyCouch via email at kidneycouch@gmail.com . Upon receipt of a notification, the KidneyCouch will take whatever action, in its sole discretion, it deems appropriate, including removal of the challenged content from the Service. Intellectual Property The Service and its original content (excluding Content provided by You or other users), features and functionality are and will remain the exclusive property of the KidneyCouch and its licensors. The Service is protected by copyright, trademark, and other laws of both the Country and foreign countries. Our trademarks and trade dress may not be used in connection with any product or service without the prior written consent of the KidneyCouch. Your Feedback to Us You assign all rights, title and interest in any Feedback You provide the KidneyCouch. If for any reason such assignment is ineffective, You agree to grant the KidneyCouch a non-exclusive, perpetual, irrevocable, royalty free, worldwide right and license to use, reproduce, disclose, sub-license, distribute, modify and exploit such Feedback without restriction. Links to Other Websites Our Service may contain links to third-party web sites or services that are not owned or controlled by the KidneyCouch. The KidneyCouch has no control over, and assumes no responsibility for, the content, privacy policies, or practices of any third-party web sites or services. You further acknowledge and agree that the KidneyCouch shall not be responsible or liable, directly or indirectly, for any damage or loss caused or alleged to be caused by or in connection with the use of or reliance on any such content, goods or services available on or through any such web sites or services. We strongly advise You to read the terms and conditions and privacy policies of any third-party web sites or services that You visit. Termination We may terminate or suspend Your Account immediately, without prior notice or liability, for any reason whatsoever, including without limitation if You breach these Terms and Conditions. Upon termination, Your right to use the Service will cease immediately. If You wish to terminate Your Account, You may simply discontinue using the Service. Limitation of Liability Notwithstanding any damages that You might incur, the entire liability of the KidneyCouch and any of its suppliers under any provision of this Terms and Your exclusive remedy for all of the foregoing shall be limited to the amount actually paid by You through the Service or 100 USD if You haven’t purchased anything through the Service. To the maximum extent permitted by applicable law, in no event shall the KidneyCouch or its suppliers be liable for any special, incidental, indirect, or consequential damages whatsoever (including, but not limited to, damages for loss of profits, loss of data or other information, for business interruption, for personal injury, loss of privacy arising out of or in any way related to the use of or inability to use the Service, third-party software and/or third-party hardware used with the Service, or otherwise in connection with any provision of this Terms), even if the KidneyCouch or any supplier has been advised of the possibility of such damages and even if the remedy fails of its essential purpose. Some states do not allow the exclusion of implied warranties or limitation of liability for incidental or consequential damages, which means that some of the above limitations may not apply. In these states, each party’s liability will be limited to the greatest extent permitted by law. “AS IS” and “AS AVAILABLE” Disclaimer The Service is provided to You “AS IS” and “AS AVAILABLE” and with all faults and defects without warranty of any kind. To the maximum extent permitted under applicable law, the KidneyCouch, on its own behalf and on behalf of its Affiliates and its and their respective licensors and service providers, expressly disclaims all warranties, whether express, implied, statutory or otherwise, with respect to the Service, including all implied warranties of merchantability, fitness for a particular purpose, title and non-infringement, and warranties that may arise out of course of dealing, course of performance, usage or trade practice. Without limitation to the foregoing, the KidneyCouch provides no warranty or undertaking, and makes no representation of any kind that the Service will meet Your requirements, achieve any intended results, be compatible or work with any other software, applications, systems or services, operate without interruption, meet any performance or reliability standards or be error free or that any errors or defects can or will be corrected. Without limiting the foregoing, neither the KidneyCouch nor any of the KidneyCouch’s provider makes any representation or warranty of any kind, express or implied: (i) as to the operation or availability of the Service, or the information, content, and materials or products included thereon; (ii) that the Service will be uninterrupted or error-free; (iii) as to the accuracy, reliability, or currency of any information or content provided through the Service; or (iv) that the Service, its servers, the content, or e-mails sent from or on behalf of the KidneyCouch are free of viruses, scripts, trojan horses, worms, malware, timebombs or other harmful components. Some jurisdictions do not allow the exclusion of certain types of warranties or limitations on applicable statutory rights of a consumer, so some or all the above exclusions and limitations may not apply to You. But in such a case the exclusions and limitations set forth in this section shall be applied to the greatest extent enforceable under applicable law. Governing Law The laws of the Country, excluding its conflicts of law rules, shall govern this Terms and Your use of the Service. Your use of the Application may also be subject to other local, state, national, or international laws. Disputes Resolution If You have any concern or dispute about the Service, You agree to first try to resolve the dispute informally by contacting the KidneyCouch. For European Union (EU) Users If You are a European Union consumer, you will benefit from any mandatory provisions of the law of the country in which you are resident in. United States Legal Compliance You represent and warrant that You are not located in a country that is subject to the United States government embargo, or that has been designated by the United States government as a “terrorist supporting” country, and You are not listed on any United States government list of prohibited or restricted parties. Severability and Waiver Severability If any provision of these Terms is held to be unenforceable or invalid, such provision will be changed and interpreted to accomplish the objectives of such provision to the greatest extent possible under applicable law and the remaining provisions will continue in full force and effect. Waiver Except as provided herein, the failure to exercise a right or to require performance of an obligation under these Terms shall not affect a party’s ability to exercise such right or require such performance at any time thereafter nor shall the waiver of a breach constitute a waiver of any subsequent breach. Translation Interpretation These Terms and Conditions may have been translated if We have made them available to You on our Service. You agree that the original English text shall prevail in the case of a dispute. Changes to These Terms and Conditions We reserve the right, at Our sole discretion, to modify or replace these Terms at any time. If a revision is material, We will make reasonable efforts to provide at least 30 days’ notice prior to any new terms taking effect. What constitutes a material change will be determined at Our sole discretion. By continuing to access or use Our Service after those revisions become effective, You agree to be bound by the revised terms. If You do not agree to the new terms, in whole or in part, please stop using the website and the Service. Contact Us If you have any questions about these Terms and Conditions, You can contact us: By email: kidneycouch@gmail.com By visiting this page on our website: https://www.kidneycouch.com/ Last Updated: June 3, 2025 Terms and Conditions pdf

  • Surveillance | KidneyCouch

    Discover the role of surveillance in kidney cancer care, including monitoring strategies and what they mean for your health. Surveillance Clear cell, renal cell carcinoma (ccRCC) patient's that have a partial or radical nephrectomy are usually followed up under a surveillance program based on their individual case. General guidelines, such as those outlined by Dr. Brad Leibovich, Mayo Clinic, serve as recommendations for physicians to follow patients who have had a nephrectomy, monitoring the patient for any recurrence of renal cancer. Dr. Leibovich and his team developed the Progression-Free Survival Score to classify patient's as low, medium, and high risk for recurrence. Active Surveillance Follow Up for Kidney Cancer Predicting Outcomes in RCC Prognostic Models Patient Classification* The Leibovich Model recommends imaging / follow up for all patient classifications at 3 months post-surgery to check for recurrence as well as establish a new baseline for the patient for comparison against future imaging / testing. The higher the risk a patient is for recurrence, the more frequent are the intervals for ongoing testing. Stage I and II (Low Risk) 3 months post op CT or MRI with contrast of abdomen Chest x-ray Basic Metabolic Panel (BMP) then, Annually for 5 years after surgery (same testing as above) then, > 5 years Renal ultrasound Chest x-ray at clinical discretion Stage III (Intermediate Risk) 3 months post op CT or MRI with contrast of abdomen/pelvis Chest x-ray or CT Basic Metabolic Panel (BMP) then, 6 month intervals for 3 years (same testing as above) then, >3 years - Annually (same testing as above) then, > 5 years - Patient Specific Based on individual patient's case / history Stage IV (High Risk) 3 months post op CT or MRI with contrast of abdomen/pelvis Chest x-ray or CT Basic Metabolic Panel (BMP) then, 4 month intervals for 2 years (same testing as above) then, >2 years at 6 month intervals (years 3 to 5 after surgery) (same testing as above) then, > 5 years - Annually (same testing as above) *Based on published Mayo Clinic risk score (Leibovich BC, Cancer 2003;97:1663-1671) National Comprehensive Cancer Network Kidney Cancer Guidelines The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 33 leading cancer centers devoted to patient care, research, and education. The NCCN develops resources that present valuable information to stakeholders in health care. Part of their mission is creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers. One of the guidelines is the recommended treatment for patients with kidney cancer. The most recent Kidney Cancer Treatment Guidelines (March 2025) can be viewed on the NCCN website in pdf format. These guidelines are detailed and extensive. Well worth your time and attention if you want to understand the details of the management and treatment guidelines for kidney cancer at all stages. An important note is that the guidelines are just that - guidelines. No single follow-up plan is appropriate (fits) all patients. Management should be individualized based on each patient's unique medical condition and other contributing factors.

  • Close Up - T3a ccRCC | KidneyCouch

    A close up look at Jeff Kallis's journey with kidney cancer - diagnosis, a photo of the right kidney and what stage 3 renal cell carcinoma looks like. Kidney Cancer Example ccRCC Stage T3a, Grade 3 These images are from my personal journey with Clear Cell Renal Cell Carcinoma. I was diagnosed in January 2023 and had a radical nephrectomy in February 2023. jeff kallis CT Scan Images The CT scan on January 25, 2023 confirmed that I had a kidney stone) and pinpointed where the stone was located. I did have a 6 mm kidney stone from my left kidney, lodged in the ureter at the entrance of the bladder and refusing to move further. In addition, something more sinister was identified. A 5 cm mass in my other (right) kidney. Thank God for that kidney stone. I had no symptoms from the kidney mass itself, in the right kidney. CT scans and MRI's do a lot of slicing and dicing of body parts, and keeps them together in the end. Kidney Stone Kidney Tumor Pathology - Kidney This is my right kidney that was removed during my radical nephrectomy. The highlighted area is the kidney mass. The pathologist at Mayo Clinic, Dr. John Cheville, diagnosed the mass as Stage T3a, Grade 3, with renal vein invasion. The mass was a higher stage and grade and was more invasive than what could be seen with imaging alone. The time from when I was first tested for symptoms (January 20, 2023) until the tumor was removed from my kidney (February 15, 2023) was 27 days. That's one of many benefits from being seen at an integrated medical practice (Mayo Clinic Rochester) that specializes in kidney cancer. Profoundly grateful for the care and compassion I have received.

  • Affiliates and Partners | KidneyCouch

    Partners and Affiliates of KidneyCouch.com. Affiliates and Partners KidneyCouch is proud to partner with organizations who's mission is to bring awareness, education, support, and resources to patients, friends and family members, and caregivers that experience kidney cancer journeys. Everyone has a story to tell. A unique, personal experience that we want to bring an additional voice to. The affiliations that we have forged share the mission of KidneyCouch to bring support and healing - medically and emotionally - through education and awareness for patients experiencing kidney cancer personally or within their circle of friends and family. We are pleased that the following organizations have joined us around the Couch to advance this mission. Kidney Cancer Association The KCA promotes scientific advances through two annual research symposiums and a robust grant program, participates in legislative advocacy, and seeks to be a source of education and resources for patients, caregivers, and anyone impacted by kidney cancer. KCA's vision is to be the universal leader in finding the cure for kidney cancer. Their mission is to be a global community dedicated to serving and empowering patients and caregivers, and leading change through advocacy, research, and education. Imerman Angels Imerman Angel's mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, one-on-one connection with someone who has been there. Imerman Angels envisions a world where cancer is not a solitary experience. Smart Patients Smart Patients is an online community for patients and families affected by a variety of illnesses. Here you can learn at your own level about scientific developments related to your condition, share your questions and concerns with other members, and use what you learn in the context of your own life. We believe patients are the most underutilized resource in healthcare. We’ve watched patients become experts in their conditions — and we see that their knowledge improves the care they receive. With the right tools, you and other patients can do the same. Future Partners KidneyCouch is reaching out to other like-minded organizations to form affiliations with. Reach out if interested!

  • Treatment | KidneyCouch

    Explore kidney cancer treatment options, from surgery to targeted therapies, and make informed decisions about your care. Kidney Cancer Treatment Options Overview Kidney Cancer Treatments Diagnosis and Treatment Treatment Options - KCA Ablation Treatment Options - Small Tumor Roadmap - T1 Masses - MUSIC Surgery Nephrectomy - EAU Robot-Assisted Partial - EAU Surveillance Immunotherapy NCCN Evidence Blocks (pdf) Advances in Treatment NCCN Treatment Details Stage IV Treatment In stage IV kidney cancer, the main tumor has grown outside the kidney, or the cancer has spread to other parts of the body such as distant lymph nodes or other organs. Treatment of stage IV kidney cancer depends mainly on how extensive the cancer is and on a person’s general health. Experts agree that targeted therapy is the main treatment for stage IV kidney cancer. Targeted therapy uses drugs to target specific molecules on cancer cells or inside them. In some cases, surgery may still be a part of treatment. Surveillance Stage IV - (High Risk)* 3 months post op CT or MRI with contrast of abdomen/pelvis Chest x-ray or CT Basic Metabolic Panel (BMP) then, 4 month intervals for 2 years (same testing as above) then, >2 years at 6 month intervals (years 3 to 5 after surgery) (same testing as above) then, > 5 years - Annually (same testing as above) Treatment National Cancer Institute Canadian Cancer Society Healthline City of Hope Learn from the best: MD Anderson Memorial Sloan Kettering Dana-Farber *The Leibovich Model recommends imaging / close follow up for patients classified as Stage IV post-surgery. Based on published Mayo Clinic risk score (Leibovich BC, Cancer 2003;97:1663-1671) National Comprehensive Cancer Network Kidney Cancer Guidelines The most recent Kidney Cancer Treatment Guidelines (January 2026) can be viewed on the NCCN website in pdf format. These guidelines are detailed and extensive. Well worth your time and attention if you want to understand the details of the management and treatment guidelines for kidney cancer at all stages. An important note is that the guidelines are just that - guidelines. No single follow-up plan is appropriate (fits) all patients. Management should be individualized based on each patient's unique medical condition and other contributing factors.

  • Explore Kidney Cancer Patient Journeys | KidneyCouch

    Navigate your kidney cancer journey with stage-specific guidance and resources tailored to your needs. Top of Page Stage 4 Recurrent Stage 1 & 2 Stage 3 Common Journeys for Patients with ccRCC According to the Cancer Research Institute, 90 percent of kidney cancers are renal cell carcinoma (RCC). Of these, 70 percent have the subtype of "clear cell" renal cell carcinoma (ccRCC). Staging is a way to describe the cancer in terms of location and how far it has spread. It helps physicians determine the best course of treatment for the patient. The typical journey for each of the 4 stages ( I - IV ) is outlined below. 1 2 3 4 Information from the American Cancer Society, 2024, edited. Stage I and II cancers are confined to the kidney. Stage I is the least aggressive stage and has the highest five-year survival rate. Stage II is more serious than Stage I but still confined to the kidney. Active surveillance Some small (Stage I) cancers might not need to be treated right away. Small tumors often grow slowly, and some might never cause serious problems. Active surveillance might be an option for some people with small kidney tumors. The tumor is monitored closely with regular imaging tests (CT scans or MRI) and other tests. Further treatment may be necessary if the tumor grows or starts to show other concerning signs. Surgery If treatment is needed, the kidney cancer is usually removed with surgery when possible. Partial nephrectomy (removing the part of the kidney containing the cancer) is often the treatment of choice for smaller tumors. This is especially true for people who have reduced kidney function (or who might have it in the future). Radical nephrectomy (removing the entire kidney) is often favored if the tumor is larger, if it’s in the central part of the kidney, or if there’s more than one tumor in the kidney. Some lymph nodes near the kidney are often removed as well. More lymph nodes might need to be removed if any of them look enlarged on imaging tests, or if there’s a higher risk that the cancer might spread to the nodes. Most often, no further treatment is needed after surgery. If, after surgery, the cancer cells are found to have troubling features when evaluated in the lab (such as being very high grade), one option might be to get adjuvant (additional) treatment to help lower the risk of the cancer coming back. Other treatment options For people who aren’t healthy enough to have surgery or who don't want surgery, other local treatments such as cryotherapy or radiofrequency ablation (RFA) can sometimes be used to destroy (ablate) the kidney tumor. Radiation therapy (particularly stereotactic body radiation therapy, or SBRT) may be another option. Although these types of treatments can have outcomes similar to surgery as far as the chances of the cancer spreading to other parts of the body, some studies show the cancer might be more likely to come back in the same area. 1 and 2 Stage 1 & 2 Stage 3 3 Stage III kidney cancers have grown into nearby large veins or tissues around the kidney, and/or they have spread to nearby lymph nodes. Surgery Surgery is typically the treatment for Stage III. Most often, this is a radical nephrectomy, in which the entire kidney is removed. A partial nephrectomy (removing the part of the kidney containing the tumor) might also be an option if it’s possible, especially in people with reduced kidney function or who have tumors in both kidneys. Some lymph nodes near the kidney are often removed as well. More lymph nodes might need to be removed if any of them look enlarged on imaging tests , or if there’s a higher risk that the cancer might spread to the nodes. If the cancer has grown into the inferior vena cava (the large vein that brings blood from the lower part of the body back up to the heart), your surgeon may need to cut open this vein to remove all of the cancer. For clear cell RCC, an option after surgery is to get adjuvant (additional) treatment to help lower the risk of the cancer coming back (recurrence). Other treatment options For people who can’t have surgery for some reason, radiation therapy or ano ther type of local treatment might be options. Some stage III cancers can’t be removed completely by surgery or destroyed with other treatments. These cancers might get the same treatment as stage IV cancers, with t argeted therapy drugs, immunotherapy , or a combination of these. Stage 4 4 With Stage IV kidney cancer, the main tumor has grown outside the kidney, or the cancer has spread to other parts of the body such as distant lymph nodes or other organs. Treatment of Stage IV kidney cancer depends mainly on how extensive the cancer is and on a person’s general health. For most people with Stage IV kidney cancer, medicines such as immunotherapy and targeted drugs are the main treatments (see below). But in some cases, surgery may still be a part of treatment. While it’s not common, sometimes the main tumor appears to be removable and there is only limited spread to another area (such as to one or a few spots in the lungs). In these situations, surgery to remove both the kidney and the metastasis (the outside area of cancer spread) may be an option if a person is in good enough health. Other options to treat the metastatic tumors might include ablative treatments or radiation therapy . If all of the tumors are removed (or destroyed), additional (adjuvant) treatment with the immunotherapy drug(s) might be considered. If the kidney tumor can be removed but the cancer has spread extensively elsewhere, treatment options might include: Removing kidney with the tumor first. This type of surgery (known as a cytoreductive nephrectomy) isn’t recommended for most people, but it might be an option for otherwise healthy people in a low-risk group . Surgery is then followed by drug treatments for most people. Giving drug treatments (immunotherapy and/or targeted drugs) first. This is likely to be preferred for most people, even if it looks like the cancer in the kidney can be removed. For some people, if the cancer shrinks a lot with this treatment, surgery, ablative treatments , or radiation therapy might be options to try to remove or destroy any remaining tumors. If the kidney tumor isn’t removable If the kidney tumor can’t be removed, the first treatment is usually with medicines such as immunotherapy and/or targeted therapy drugs. Often, one of each type of drug is part of the first treatment. Which ones are used depends to some extent on if the cancer is a clear cell RCC or a non-clear cell RCC. If one treatment doesn’t work (or stops working), another one can often be tried. For some less common types of non-clear cell RCC, such as collecting duct RCC or renal medullary carcinoma, chemotherapy is often the first treatment. While it’s not common, sometimes the first treatment might shrink the tumors enough so that surgery , ablative treatments , or radiation , might be options to try to get rid of any remaining tumors. In other situations, surgery or other treatments might be used to help relieve symptoms from the cancer, such as pain or bleeding, rather than trying to get rid of the cancer completely. This type of treatment is called palliative therapy. If you have advanced kidney cancer (stage IV) and your doctor suggests surgery, ablation, or radiation, be sure you understand what the goal of the treatment is. No matter what type of treatment you’re getting, having your pain controlled can help you maintain your quality of life. Treating the cancer itself can often help with this. Medicines to relieve pain can also be helpful, and they will not interfere with your other treatments. Controlling any pain you have can often help you be more active and continue your daily activities. Because advanced kidney cancer is very hard to cure, clinical trials of new combinations of targeted therapy drugs, immunotherapy, or other new treatments are also options. Treating Recurrent Kidney Cancer Cancer is called recurrent when it comes back after treatment. Recurrence can be local (near the area of the original tumor), or it may be in distant parts of the body. Treatment of kidney cancer that comes back (recurs) after initial treatment depends on where it recurs and what treatments have been used, as well as a person’s health and wishes for further treatment. Local recurrence For cancers that recur near the area of the original kidney tumor after surgery, further surgery, other localized treatments, or radiation might be options. Even if not all of the cancer can be removed or destroyed, these treatments might still help relieve symptoms in some people. Other treatment options will most likely include immunotherapy and/or targeted therapy drugs. Clinical trials of new treatments are an option as well. Distant recurrence Kidney cancer that recurs in distant parts of the body is treated like stage IV cancer (see above). Your options will depend on where the cancer is; if it’s thought to be removable or not; which, if any, drugs you received as part of your first treatment (and how long ago you got them); and on your overall health and preferences. For cancers that continue to grow or spread during treatment with immunotherapy or targeted therapy drugs, different drugs still might be helpful. Recurrent cancers can sometimes be hard to treat, so you might also want to ask your doctor about clinical trials. For some people with recurrent kidney cancer, palliative treatments may be the best option. These treatments are intended to help control the cancer and relieve any symptoms it is causing. Options might include radiation therapy, ablative treatments, or even some type of surgery, if a person is healthy enough. Controlling symptoms such as pain is also an important part of treatment at any stage of the disease. Recurrent

bottom of page