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Kidney Cancer - Honors The Laurel Wreath represents victory over cancer and honors those who have been diagnosed or have passed away from kidney cancer. Individuals listed on this page are recognized and lifted up as a member of the kidney cancer community. Mike Peterson An avid naturalist and outdoorsman, Mike quietly lived life. Soon after retiring, things he enjoyed most created fatigue. A stubborn man, his son finally convinced him to go to the Emergency Department to be evaluated. The doctors discovered a mass in his kidney, liver, and lungs. Stage 4 renal cell carcinoma. Mike passed away quietly on July 1, 2025. The same way he lived. God Bless his memory. Sid Sadler A husband and father, Sid Sadler was diagnosed with kidney cancer in December 2023. Sid was just 32 years of age at the time of the unexpected news that a 10.5 cm mass was growing in his kidney. Since a complete nephrectomy of his left kidney, Sid has been running full speed ahead. Sid set out to learn everything he could about renal cell carcinoma and how he can be a supportive voice for others walking a similar journey. Read More Read More 1 Page 1 Share Your Story Share your kidney cancer story with us. Submit your name, a brief story, and a photo. Name Email Kidney Cancer Story Upload Photo (Max 15MB) Submit

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KidneyCouch is an online support group for kidney cancer patients and/or patients with chronic kidney disease. KidneyCouch website is a library of related links and educational material for patients and family members. KidneyCouch © Copyright STRENGTH in UNITY At KidneyCouch, we are dedicated to providing a supportive and informative space for kidney cancer patients and those who are also dealing with chronic kidney disease (CKD). Access valuable resources, stories, and articles that can make a difference in your journey. CONNECTIONS KidneyCouch Podcast Resource Library About the Couch ABOUT KidneyCouch KidneyCouch is committed to offering support and information to individuals battling kidney cancer and/or chronic kidney disease (CKD). Our goal is to create a community that fosters connection, understanding, and empowerment for patients and their loved ones. Through resource links, stories, and articles, we aim to provide helpful insights and education so that you are better informed in discussing your kidney cancer and chronic kidney disease with your physician. Always consult your physician before making any medical decisions. Friends Around the Couch KidneyCouch gives recognition and appreciation to the following organizations and their efforts to address kidney cancer and chronic kidney disease. Urology Care Foundation Kidney Cancer Association National Kidney Foundation American Cancer Society Imerman Angels The Patient Story Smart Patients Cancer Interviews INSPIRING STORIES Read Now Purpose of This Site This website was developed and is maintained for the sole purpose of providing a "Library" of resources for patients dealing with kidney cancer, chronic kidney disease, or kidney stones. There is no fundraising, sponsors, or business activities of any kind. The information included on this website is for informational purposes only. This site does not provide medical advice.

Back Sid Sadler Being diagnosed with kidney cancer at 32 years of age wasn't in my "plan," if we want to call it a plan. I'm 34 now, and approaching another round of scans to ensure the cancer removed from my body is gone. December of 2023, I had an episode of hematuria in my urine, and that led to a CT which revealed a 10.5 cm tumor on my left kidney. A slew of appointments made with Vanderbilt led to a plan of a radical nephrectomy removing my tumor and left kidney. February of 2024 the surgery took place. Surprisingly, I recovered well. I had my surgery on a Monday, and I was home that Wednesday afternoon. Eagerly awaiting my pathology results, while also browsing the internet for others in my situation. I didn't find many, but I found a few, and I leaned on those few very hard. With no other evidence of disease, I hoped for a diagnosis of stage two or three, knowing other factors such as grade and type played a big factor in my outlook. The results come back. Stage 2b, grade two Clear Cell Renal Carcinoma. After meeting with my team, a scan schedule was put into place. Hesitant and nervous at first, I learn the rhythm we all learn after cancer enters our lives. Soon thereafter, my wife and I find out she is expecting a baby, and our world goes from one end of the spectrum to another end of emotions. We welcome a beautiful healthy baby girl into the world just short of one year after my surgery. Life is crazy, isn't it? I started as a scared patient, and I still am. However, I'm also equipped with knowledge now, and most importantly perspective. I dove into advocacy, joining the patient family advisory councils at Vanderbilt Ingram Cancer Center, and The Kidney Cancer Association. I was recently invited to join the Board of Directors for The Judy Nicholson Kidney Cancer Foundation. If I could say one thing to you, it's that cancer isn't a period for a lot of us. It's a comma. Once a plan is set in place, things will get better. We have come a long way in treatment for both localized and stage four kidney cancer. I'm confident in my team and the other countless doctors researching this disease. Onward.

Back Mike Peterson My father, Mike, was an avid naturalist and outdoorsman who could pretty much run circles uphill around people who were half his age. It was hard to keep up with him! He had always been a muscular, yet petite man. He was a quiet, reserved man, who, despite that, loved to joke and show others a slower pace of life. During the last half of 2024, though, he began to notice he didn't have the same strength and energy he had always had. His appetite, which had always been vigorous, was gone now, too. He thought it was all a part of aging, since he had just retired. The fatigue persisted. He would still climb the steep hills around his house in order to chop firewood and manually haul huge logs down to his house via wheelbarrow, but, now it took extreme effort for him to do so. But still, that man was tough as a pine knot to do the things he did. I, along with other concerned loved ones, thought maybe him slowing down and being more reclusive was depression. By March of 2025, he was sleeping excessively, and he had night sweats. Still, he refused to go to the doctor and he still managed to go up into the woods. Back in his 20s and 30s, he had had reoccurring kidney stones that had resulted in multiple surgeries. It made him fear going back to doctors. "They're just looking for something to be wrong with me." When we went out for lunch for Mother's Day, it was clear to me how much weight he had lost. He didn't eat much at all, and he was irritable, which wasn't like him at all. It was obvious to me something was wrong, because he wasn't acting like his normal self. His voice sounded strained, as well. His wife begged him to go to the doctor, and I did too. This battle with trying to convince my dad went back and forth with him until he finally agreed at the end of May to go to the local Emergency Department to get tests. It started out that they found a tumor on his kidney and his oxygen was low. He was immediately told to go to another local hospital that could perform better imaging. He would be admitted to that hospital. Someone asked him how long he had felt sick, and he told them "too long". More findings. He had tumors in his kidneys, liver and lungs. His diagnosis was stage 4 renal cell carcinoma. Other than the loss of appetite and fatigue, he said he hadn't had kidney pain or any other symptoms. He said he'd fight it like a tiger, no matter what the outcome. He and I discussed the facts of his diagnosis, and he wanted me to know that his prognosis wasn't good. He had worked in a long-term health facility for 32 years and he had seen a lot during that time. He and I knew treatments could bring comfort, and we wanted quality of life. I wanted my daddy cured, but, I knew it wouldn't be. He was sent home with oxygen support. His first immunotherapy was set to start on July 1st. On June 30th, he ended up in the Emergency Department again due to confusion, low oxygen, and blood clots that were discovered in his leg and lungs. He told me that morning he was ready to go home. His last words to me were "I love you." He passed away quietly the next morning, on July 1st, the same day he would have begun his immunotherapy. In his own way, on his own terms, he had received his ultimate healing from kidney cancer. I love and miss you, Daddy, every single day.

ccRCC Stage T3a, Grade 3 These images are from my personal journey with Clear Cell Renal Cell Carcinoma. I was diagnosed in January 2023 and had a radical nephrectomy in February 2023. jeff kallis CT Scan Image This is an image from the CT scan I had on January 25, 2023. The reason for the CT Urogram was to confirm that I had a kidney stone(s) and pinpoint where the stone(s) was located. I did have a 6 mm kidney stone from my left kidney, lodged in the ureter at the entrance of the bladder and refusing to move further. In addition, something more sinister was identified. A 5 cm mass in my other (right) kidney. Thank God for that kidney stone. I had no symptoms from the kidney mass itself, in the right kidney. CT scans and MRI's do a lot of slicing and dicing of body parts, and keeps them together in the end. Kidney Stone Kidney Tumor Pathology - Kidney This is my right kidney that was removed during my radical nephrectomy. The highlighted area is the kidney mass. The pathologist at Mayo Clinic, Dr. John Cheville, diagnosed the mass as Stage T3a, Grade 3, with renal vein invasion. The mass was a higher stage and grade and was more invasive than what could be seen with imaging alone. The time from when I was first tested for symptoms (January 20, 2023) until the tumor was removed from my kidney (February 15, 2023) was 27 days. That's one of many benefits from being seen at an integrated medical practice (Mayo Clinic Rochester) that specializes in kidney cancer. Profoundly grateful for the care and compassion I have received.

Educational links and resources for patients and family members who are dealing with kidney cancer and chronic kidney disease. KidneyCouch Interactive © Copyright Are you or a loved one currently dealing with kidney disease and in need of support and connection to interactive tools and engagement? Forums for discussion can facilitate deeper engagement among individuals dealing with kidney cancer and chronic kidney disease, fostering a sense of belonging within the community of patients dealing with similar issues. Kidney Cancer Support Groups KidneyCouch Community - Smart Patients Kidney Cancer Information and Support Community - Kidney Cancer Association Patient Perspectives - Virtual Support Group - Kidney Cancer Association Kidney Cancer Unfiltered - Podcasts - Kidney Cancer Association Kidney Cancer Support Group - Mayo Clinic Stages1-2-3 Kidney Cancer Support Community - KCCure Chronic Kidney Disease (CKD) Support Group Go To KidneyCouch Community One-on-One Connection One-on-One Cancer Support Community Resource Partners Imerman Angels provides free, personalized one-on-one cancer support for cancer fighters, survivors, previvors and caregivers. The purpose of the matches made by Imerman Angels is to provide one-on-one cancer support from someone who has been there. To reach out to Imerman Angels to find a mentor for one-on-one support, go to https://imermanangels.org/find-mentor-angel/ Imerman Angels – Certification 🎉 Proud to be part of Imerman Angels! 🌟 I completed the Mentor training at Imerman Angels in June 2025 and am officially a Mentor Angel. Imerman Angels provides free one-on-one support to cancer fighters, survivors, previvors, and caregivers to ensure no one faces cancer alone. Sign up to be a Mentor or Mentee and learn more at @imermanangels or visit their website imermanangels.org Patient-Focused Tools Recent Trends in SEER Age-Adjusted Incidence Rates, 2000-2022 By Sex, Delay-adjusted SEER Incidence Rate, All Races / Ethnicities, All Ages, All Stages Quick Quiz: Kidney Cancer Take the Quiz Cancer Survivors Network Kidney Cancer cBioPortal - Cancer Genomic Data Kidney Cancer

Tips for dealing with the emotional side of kidney cancer, kidney stones, and chronic kidney disease. Emotional Rollercoaster Ride Dealing with kidney cancer and chronic kidney disease can be like a roller coaster ride that you want to get off. Here are some tips on how to deal with the emotional side of kidney disease. Emotions and Cancer Feelings Scanxiety Kidney Cancer Stories Navigating Cancer Tips Coping and Support Cancer Patient Advocate Examining the Relationship Patient Navigator - KCA Coping Effectively - CKD Psychosocial Effects Managing Emotions - Part I Managing Emotions - Part II

Partners and Affiliates of the KidneyCouch.com. Affiliates and Partners KidneyCouch is proud to partner with organizations who's mission is to bring awareness, education, support, and resources to patients, friends and family members, and caregivers that experience kidney cancer journeys. Everyone has a story to tell. A unique, personal experience that we want to bring an additional voice to. The affiliations that we have forged share the mission of KidneyCouch to bring support and healing - medically and emotionally - through education and awareness for patients experiencing kidney cancer personally or within their circle of friends and family. We are pleased that the following organizations have joined us around the Couch to advance this mission. Kidney Cancer Association The KCA promotes scientific advances through two annual research symposiums and a robust grant program, participates in legislative advocacy, and seeks to be a source of education and resources for patients, caregivers, and anyone impacted by kidney cancer. KCA's vision is to be the universal leader in finding the cure for kidney cancer. Their mission is to be a global community dedicated to serving and empowering patients and caregivers, and leading change through advocacy, research, and education. Imerman Angels Imerman Angel's mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, one-on-one connection with someone who has been there. Imerman Angels envisions a world where cancer is not a solitary experience. Smart Patients Smart Patients is an online community for patients and families affected by a variety of illnesses. Here you can learn at your own level about scientific developments related to your condition, share your questions and concerns with other members, and use what you learn in the context of your own life. We believe patients are the most underutilized resource in healthcare. We’ve watched patients become experts in their conditions — and we see that their knowledge improves the care they receive. With the right tools, you and other patients can do the same. Future Partners KidneyCouch is reaching out to other like-minded organizations to form affiliations with. Reach out if interested!

KidneyCouch resource library for kidney cancer and chronic kidney disease. Empowering Patients Get informed. This website is crafted to provide links to educational resources, inspirational stories, and informative articles to help those navigating the challenges of kidney cancer and/or chronic kidney disease. The resources provided on this website are informational and educational only and not an endorsement of their content. Each patient needs to discuss their individual circumstances with their medical provider. KidneyCouch is here to uplift and empower you in your journey with kidney cancer. Stay informed, connected, and supported. Hopefully you will find the resources and testimonials helpful. Anatomy Basics Image by Adobe Stock, July 14, 2023 Kidney Anatomy, Wikipedia Illustration by A. Hoofring, 2007 The Library is Open The resources in this library are just a sampling of those accessible at your fingertips. Kidney Cancer Chronic Kidney Disease Kidney Stones Prognostic Models General Diet

KidneyCouch is proud to partner with Smart Patients, an online community for patients and families affected by kidney cancer and chronic kidney disease. The Smart Patients kidney community's online support complements KidneyCouch's belief that accessing valuable resources, stories, and articles can make a difference in your journey. You are not alone. Sunlight through the trees. You are surrounded by others who would love to connect and support you. Go To KidneyCouch Community on Smart Patients About Smart Patients Smart Patients is an online community for patients and families affected by a variety of illnesses. Connect with others and learn at your own pace about scientific developments related to your condition, share your questions and concerns with other members, and use what you learn in the context of your own life. With the right tools, you and other patients can do the same. Communities At Smart Patients, they have over 100 communities covering oncology, autoimmune diseases (like Sjögren’s and lupus), neurodegenerative diseases and their symptoms (like Parkinson’s, Alzheimer’s and dementia). They also have several communities where caregivers share tips for coping while caring for a child, parent or spouse. Smart Patients Community Home Kidney Cancer Conversations At Smart Patients, they believe patients are the most underutilized resource in healthcare. They’ve watched patients become experts in their conditions — and see that their knowledge improves the care they receive. Go To Conversations Strength in Unity Smart Patients Partners Smart Patients - Contact Information Website https://www.smartpatients.com/site Email Info@smartpatients.com

Active surveillance of kidney cancer before or after a nephrectomy is critical. Surveillance Clear cell, renal cell carcinoma (ccRCC) patient's that have a partial or radical nephrectomy are usually followed up under a surveillance program based on their individual case. General guidelines, such as those outlined by Dr. Brad Leibovich, Mayo Clinic, serve as recommendations for physicians to follow patients who have had a nephrectomy, monitoring the patient for any recurrence of renal cancer. Dr. Leibovich and his team developed the Progression-Free Survival Score to classify patient's as low, medium, and high risk for recurrence. Patient Classification* The Leibovich Model recommends imaging / follow up for all patient classifications at 3 months post-surgery to check for recurrence as well as establish a new baseline for the patient for comparison against future imaging / testing. The higher the risk a patient is for recurrence, the more frequent are the intervals for ongoing testing. Stage I and II (Low Risk) 3 months post op CT or MRI with contrast of abdomen Chest x-ray Basic Metabolic Panel (BMP) then, Annually for 5 years after surgery (same testing as above) then, > 5 years Renal ultrasound Chest x-ray at clinical discretion Stage III (Intermediate Risk) 3 months post op CT or MRI with contrast of abdomen/pelvis Chest x-ray or CT Basic Metabolic Panel (BMP) then, 6 month intervals for 3 years (same testing as above) then, >3 years - Annually (same testing as above) then, > 5 years - Patient Specific Based on individual patient's case / history Stage IV (High Risk) 3 months post op CT or MRI with contrast of abdomen/pelvis Chest x-ray or CT Basic Metabolic Panel (BMP) then, 4 month intervals for 2 years (same testing as above) then, >2 years at 6 month intervals (years 3 to 5 after surgery) (same testing as above) then, > 5 years - Annually (same testing as above) *Based on published Mayo Clinic risk score (Leibovich BC, Cancer 2003;97:1663-1671) National Comprehensive Cancer Network Kidney Cancer Guidelines The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 33 leading cancer centers devoted to patient care, research, and education. The NCCN develops resources that present valuable information to stakeholders in health care. Part of their mission is creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers. One of the guidelines is the recommended treatment for patients with kidney cancer. The most recent Kidney Cancer Treatment Guidelines (March 2025) can be viewed on the NCCN website in pdf format. These guidelines are detailed and extensive. Well worth your time and attention if you want to understand the details of the management and treatment guidelines for kidney cancer at all stages. An important note is that the guidelines are just that - guidelines. No single follow-up plan is appropriate (fits) all patients. Management should be individualized based on each patient's unique medical condition and other contributing factors.

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March is Kidney Disease Awareness Month The color ribbon for Kidney Cancer is orange. For Chronic Kidney Disease, it is green. ORANGE UP! The month of March is Kidney Cancer Awareness month. Light up the outside lights of your house, ask City leaders to light up a prominent structure, or simply wear an orange ribbon to bring awareness to kidney cancer. Kidney Cancer Awareness Association - Orange Up 81K Challenge Plummer Building The Plummer Building, Mayo Clinic, Rochester, Minnesota, lit up in orange in March every year. Friends of Stonehedge Waterfall The Friends of Stonehedge Waterfall, Rochester, MN, was lit up in orange in the month of March 2024 to bring awareness to kidney cancer. Each March going forward the waterfall will be glowing orange. Throughout the year, the Stonehedge Waterfall is lit up in different colors for cancer awareness and other causes. In April, the colors are green and blue for National Donate Life Month, honoring individuals who donate organs to others. What a great way to bring awareness and honor to these causes and menaces. There are 57 common cancer ribbon colors. Shout out to the Orange and Green! GREEN UP! March is also Chronic Kidney Disease (CKD) Awareness month. Green is the ribbon color to bring awareness. University of New Mexico Celebrates Green

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Periodic newsletters from KidneyCouch August 2025 Features the new partnership with Imerman Angels. October 2025 Features the new Affiliate Partnership with Kidney Cancer Association February 2026 Features the new partnership with Smart Patients. Join our mailing list Email* Subscribe I want to subscribe to your mailing list.